| fullrecord |
[{"key": "dc.contributor.advisor", "value": "Nikander, Riku", "language": "", "element": "contributor", "qualifier": "advisor", "schema": "dc"}, {"key": "dc.contributor.author", "value": "Rautiainen, Laura", "language": "", "element": "contributor", "qualifier": "author", "schema": "dc"}, {"key": "dc.date.accessioned", "value": "2021-05-25T12:45:32Z", "language": null, "element": "date", "qualifier": "accessioned", "schema": "dc"}, {"key": "dc.date.available", "value": "2021-05-25T12:45:32Z", "language": null, "element": "date", "qualifier": "available", "schema": "dc"}, {"key": "dc.date.issued", "value": "2021", "language": "", "element": "date", "qualifier": "issued", "schema": "dc"}, {"key": "dc.identifier.uri", "value": "https://jyx.jyu.fi/handle/123456789/75942", "language": null, "element": "identifier", "qualifier": "uri", "schema": "dc"}, {"key": "dc.description.abstract", "value": "Tutkimuksen tarkoituksena oli selvitt\u00e4\u00e4 i\u00e4kk\u00e4iden pariskuntien kokemuksia Omahoitovalmennus-ryhm\u00e4\u00e4n osallistumisesta muistisairauden varhaisessa vaiheessa. Lis\u00e4ksi tavoitteena oli tarkastella, millaisia merkityksi\u00e4 Omahoitovalmennus-ryhm\u00e4\u00e4n osallistumiseen liittyy ja miten osallistujat kuvaavat el\u00e4m\u00e4ntilannettaan Omahoitovalmennus-ryhm\u00e4n j\u00e4lkeen. T\u00e4m\u00e4n laadullisen tutkimuksen tieteenfilosofinen tausta nojautui sis\u00e4ll\u00f6nanalyysiin ja fenomenologiaan. Tutkimuksen keski\u00f6ss\u00e4 olivat i\u00e4kk\u00e4\u00e4n pariskunnan kokemukset ja merkitykset sellaisina, kuin he toivat ne esille. Tutkimuksen teoreettinen viitekehys koostui Omahoitovalmennus-ryhm\u00e4toiminnan taustalla olevista l\u00e4ht\u00f6kohdista, kuten varhaisvaiheen muistisairaus ja sen erityispiirteet, parisuhde voimavarana, min\u00e4pystyvyys, omahoitotaidot ja vertaistuki. Muistisairautta sairastavien m\u00e4\u00e4r\u00e4 lis\u00e4\u00e4ntyy nopeasti, joten muistisairauden tuomiin haasteisiin kaivataan ratkaisuja ja yksil\u00f6llisesti r\u00e4\u00e4t\u00e4l\u00f6ityj\u00e4 palveluita. Toiminta pohjautuu satunnaistettuun kontrolloituun tutkimukseen. Ryhm\u00e4toiminnan tarjoama vertaistuki mahdollistaa tunteiden ja tiedon jakamisen sek\u00e4 saa aikaan yhteenkuuluvuuden tunteen i\u00e4kk\u00e4iden pariskuntien v\u00e4lille. \nTutkimuksen empiirisen aineiston muodostivat puolistrukturoitujen haastattelujen kautta ker\u00e4tty aineisto. Haastattelin kolmea i\u00e4k\u00e4st\u00e4 pariskuntaa, jotka olivat osallistuneet samaan Omahoitovalmennus-ryhm\u00e4\u00e4n syksyll\u00e4 2020. Haastattelut tapahtuivat puhelimitse pariskunnittain sek\u00e4 verkkoalustan kautta toteutuneena fokusryhm\u00e4haastatteluna. Tulokset muodostuivat teoriaohjaavan sis\u00e4ll\u00f6nanalyysin avulla, ja ne sis\u00e4lsiv\u00e4t muistisairaiden i\u00e4kk\u00e4iden ihmisten ja heid\u00e4n puolisoidensa kokemuksia ja merkityksi\u00e4 el\u00e4m\u00e4st\u00e4 muistisairauden kanssa. Tulosten mukaan Omahoitovalmennus-toimintaan osallistuminen voi tuoda i\u00e4kk\u00e4ille pariskunnille tunteen siit\u00e4, etteiv\u00e4t he ole yksin muistisairauden kanssa ja ryhm\u00e4\u00e4n osallistuminen voi rohkaista pariskuntia puhumaan muistisairaudesta avoimesti. Lis\u00e4ksi ryhm\u00e4ss\u00e4 kiteytyi kokemus siit\u00e4, ett\u00e4 el\u00e4m\u00e4 voi jatkua hyv\u00e4n\u00e4 my\u00f6s muistisairauden kanssa. Tulosten ja johtop\u00e4\u00e4t\u00f6sten perusteella voidaan todeta, ett\u00e4 oikea-aikainen osallistuminen Omahoitovalmennus-ryhm\u00e4\u00e4n voi tukea i\u00e4kk\u00e4\u00e4n pariskunnan hyvinvointia. \n\nJatkotutkimusta tarvitaan pariskuntien hyvinvoinnin edist\u00e4misen n\u00e4k\u00f6kulmasta. Muistisairauden kohdalla tarvitaan asennemuutosta, ja tulevaisuudessa tulisi kiinnitt\u00e4\u00e4 enemm\u00e4n huomiota i\u00e4kk\u00e4iden pariskuntien voimavaroihin ja toimijuuteen. I\u00e4k\u00e4s pariskunta tulisi huomioida kokonaisvaltaisesti muistisairauden kohdalla. Muistiyst\u00e4v\u00e4llisten k\u00e4yt\u00e4nt\u00f6jen ja muistiyst\u00e4v\u00e4llisen yhteiskunnan kehitt\u00e4minen ovat merkitt\u00e4vi\u00e4 hyvinvoinnin n\u00e4k\u00f6kulmasta.", "language": "fi", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.abstract", "value": "The purpose of this study was to investigate the experiences of older couples who participated in the Circle of Couples \u2013 group. It also aimed to understand what the meaning of Circle of Couples was for the older couples and how they described their life with early-stage memory disorder. The philosophical foundation for this study was based on qualitative content analysis and phenomenology. Older couples form the core of this research. Theoretical framework for this research was based on the principles of the Circle of Couples group: early-stage dementia, strengths of the relationship, self-efficacy, self-management, and peer support. The number of people living with memory disorders is growing rapidly so there is a need for tailored solutions for people with dementia and their spouses. Circle of Couples \u2013 group is based on a randomized controlled trial. The main objective of the group is to provide peer support as it creates a sense of belonging and it allows the couples to exchange ideas and share information.\nThe empirical part of this study was based on qualitative research. I interviewed three older couples who had participated in the Circle of Couples \u2013 group during fall 2020. I collected the data by using semi-structured phone interviews and semi-structured focus group interview. The couples participated in the interviews as dyads.\n\nI used content analysis as a method of analysis. The findings of this study suggest that participation in the Circle of Couples \u2013 group may promote the feeling that the older couple is not alone with memory disorder. Participation in the group may enhance older couple\u2019s wellbeing by encouraging them to talk about dementia openly. Participating in the group also seemed to promote the feeling that life with dementia can still be of good quality. Based on the results and conclusions of this study, it is possible to say that timely participation in the Circle of Couples group may support the wellbeing of older couples. \n\nFurther research is needed to promote the wellbeing of older couples. There is a need to change the ways in which memory disorders are perceived in the society, there should be a pursuit to empower people with dementia. Older couples should be treated with a holistic approach. There is a need for co-operation to create a memory-friendly society which can enhance the well-being of older couples facing life with progressive memory disorder.", "language": "en", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Submitted by Paivi Vuorio (paelvuor@jyu.fi) on 2021-05-25T12:45:32Z\nNo. of bitstreams: 0", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Made available in DSpace on 2021-05-25T12:45:32Z (GMT). No. of bitstreams: 0\n Previous issue date: 2021", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.format.extent", "value": "87", "language": "", "element": "format", "qualifier": "extent", "schema": "dc"}, {"key": "dc.format.mimetype", "value": "application/pdf", "language": null, "element": "format", "qualifier": "mimetype", "schema": "dc"}, {"key": "dc.language.iso", "value": "fin", "language": null, "element": "language", "qualifier": "iso", "schema": "dc"}, {"key": "dc.rights", "value": "In Copyright", "language": "en", "element": "rights", "qualifier": null, "schema": "dc"}, {"key": "dc.subject.other", "value": "muistisairauden varhainen tai liev\u00e4 vaihe", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.subject.other", "value": "min\u00e4pystyvyys", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.subject.other", "value": "i\u00e4kk\u00e4\u00e4t pariskunnat", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.subject.other", "value": "memory disorders", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.subject.other", "value": "early-stage dementia", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.subject.other", "value": "self-management", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.subject.other", "value": "self-efficacy", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.subject.other", "value": "older couples", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.subject.other", "value": "relationship", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.subject.other", "value": "peer support", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.subject.other", "value": "group model", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.title", "value": "I\u00e4k\u00e4s pariskunta uuden el\u00e4m\u00e4ntilanteen kynnyksell\u00e4 : varhaisvaiheessa olevien muistisairaiden ja heid\u00e4n puolisoidensa kokemuksia Omahoitovalmennus-ryhm\u00e4st\u00e4.", "language": "", "element": "title", "qualifier": null, "schema": "dc"}, {"key": "dc.type", "value": "master thesis", "language": null, "element": "type", "qualifier": null, "schema": "dc"}, {"key": "dc.identifier.urn", "value": "URN:NBN:fi:jyu-202105253200", "language": "", "element": "identifier", "qualifier": "urn", "schema": "dc"}, {"key": "dc.type.ontasot", "value": "Pro gradu -tutkielma", "language": "fi", "element": "type", "qualifier": "ontasot", "schema": "dc"}, {"key": "dc.type.ontasot", "value": "Master\u2019s thesis", "language": "en", "element": "type", "qualifier": "ontasot", "schema": "dc"}, {"key": "dc.contributor.faculty", "value": "Liikuntatieteellinen tiedekunta", "language": "fi", "element": "contributor", "qualifier": "faculty", "schema": "dc"}, {"key": "dc.contributor.faculty", "value": "Faculty of Sport and Health Sciences", "language": "en", "element": "contributor", "qualifier": "faculty", "schema": "dc"}, {"key": "dc.contributor.department", "value": "Liikunta- ja terveystieteet", "language": "fi", "element": "contributor", "qualifier": "department", "schema": "dc"}, {"key": "dc.contributor.department", "value": "Sport and Health Sciences", "language": "en", "element": "contributor", "qualifier": "department", "schema": "dc"}, {"key": "dc.contributor.organization", "value": "Jyv\u00e4skyl\u00e4n yliopisto", "language": "fi", "element": "contributor", "qualifier": "organization", "schema": "dc"}, {"key": "dc.contributor.organization", "value": "University of Jyv\u00e4skyl\u00e4", "language": "en", "element": "contributor", "qualifier": "organization", "schema": "dc"}, {"key": "dc.subject.discipline", "value": "Gerontologia ja kansanterveys", "language": "fi", "element": "subject", "qualifier": "discipline", "schema": "dc"}, {"key": "dc.subject.discipline", "value": "Gerontology and Public Health", "language": "en", "element": "subject", "qualifier": "discipline", "schema": "dc"}, {"key": "yvv.contractresearch.funding", "value": "0", "language": "", "element": "contractresearch", "qualifier": "funding", "schema": "yvv"}, {"key": "dc.type.coar", "value": "http://purl.org/coar/resource_type/c_bdcc", "language": null, "element": "type", "qualifier": "coar", "schema": "dc"}, {"key": "dc.rights.accesslevel", "value": "openAccess", "language": null, "element": "rights", "qualifier": "accesslevel", "schema": "dc"}, {"key": "dc.type.publication", "value": "masterThesis", "language": null, "element": "type", "qualifier": "publication", "schema": "dc"}, {"key": "dc.subject.oppiainekoodi", "value": "50423", "language": "", "element": "subject", "qualifier": "oppiainekoodi", "schema": "dc"}, {"key": "dc.subject.yso", "value": "ryhm\u00e4toiminta", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "vertaistuki", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "parisuhde", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "ik\u00e4\u00e4ntyneet", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "itsehoito", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "muistisairaudet", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.format.content", "value": "fulltext", "language": null, "element": "format", "qualifier": "content", "schema": "dc"}, {"key": "dc.rights.url", "value": "https://rightsstatements.org/page/InC/1.0/", "language": null, "element": "rights", "qualifier": "url", "schema": "dc"}, {"key": "dc.type.okm", "value": "G2", "language": null, "element": "type", "qualifier": "okm", "schema": "dc"}]
|