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[{"key": "dc.contributor.author", "value": "Hanhikoski, Emmi", "language": null, "element": "contributor", "qualifier": "author", "schema": "dc"}, {"key": "dc.date.accessioned", "value": "2012-11-07T10:33:21Z", "language": null, "element": "date", "qualifier": "accessioned", "schema": "dc"}, {"key": "dc.date.available", "value": "2012-11-07T10:33:21Z", "language": null, "element": "date", "qualifier": "available", "schema": "dc"}, {"key": "dc.date.issued", "value": "2006", "language": null, "element": "date", "qualifier": "issued", "schema": "dc"}, {"key": "dc.identifier.other", "value": "oai:jykdok.linneanet.fi:1234183", "language": null, "element": "identifier", "qualifier": "other", "schema": "dc"}, {"key": "dc.identifier.uri", "value": "https://jyx.jyu.fi/handle/123456789/40183", "language": null, "element": "identifier", "qualifier": "uri", "schema": "dc"}, {"key": "dc.description.abstract", "value": "Perheen rooli hoivan tarjoajana on muuttunut viime vuosikymmenin\u00e4 merkitt\u00e4v\u00e4sti.\nPerinteisesti perheet muodostuivat useammasta sukupolvesta, ja perheyhteis\u00f6 kasvatti lapset\nja hoiti vammaiset ja ik\u00e4\u00e4ntyneet usein loppuun saakka. Kehitysvammaisten ihmisten\nkohdalla perhe on perinteisesti, vaihtoehtojen puutteessa, tarjonnut tarvittavan hoidon ja\nhoivan. Elinik\u00e4inen huolenpito ja oman lapsen hoivaaminen on yhteiskunnassa nykyisin\nhyvin ep\u00e4tyypillinen perhe-el\u00e4m\u00e4n muoto: ik\u00e4\u00e4ntyvi\u00e4 vanhempia hoidetaan kotona yleens\u00e4\nsuhteellisen lyhyen aikaa, ehk\u00e4 joitakin vuosia, mutta kehitysvammaista lasta hoidetaan\nkotona useita vuosia, jopa useita vuosikymmeni\u00e4.\nTutkimuksen tarkoituksena oli kuvata kehitysvammaisen lapsen vanhempien mahdollisuuksia\ntehd\u00e4 valintoja tilanteessa, jossa kehitysvammainen henkil\u00f6 asuu vanhempiensa luona.\nTavoitteena oli kartoittaa, mik\u00e4 merkitys julkisilla erityispalveluilla on kehitysvammaisen\nlapsen, nuoren tai aikuisen vanhemmille. Tutkimuksen aineistona k\u00e4ytettiin kvantitatiivista\naineistoa (N = 87), joka oli koottu haastattelemalla jyv\u00e4skyl\u00e4l\u00e4isten kehitysvammaisten\nvanhempia strukturoitua haastattelua k\u00e4ytt\u00e4m\u00e4ll\u00e4.\nAineiston perusteella voidaan todeta, ett\u00e4 kehitysvammaperheille arjen sujumista ajatellen\nt\u00e4rkeint\u00e4 on l\u00e4hipiirin eli l\u00e4hisukulaisten, yst\u00e4vien ja naapurien tarjoama apu. Palveluja\npidettiin my\u00f6s t\u00e4rkein\u00e4, mutta arkip\u00e4iv\u00e4n jaksamista ajatellen l\u00e4hipiirin merkitys oli suurempi.\nValtaosa vanhemmista oli kokenut saaneensa kehitysvammaiselle lapselleen liian v\u00e4h\u00e4n\npalveluja. Palvelujen tarjontaa suurempi tarve tuli esiin ik\u00e4\u00e4ntyvien ja\nyksinhuoltajavanhempien perheiss\u00e4, sek\u00e4 vaikeimmin kehitysvammaisten perheiss\u00e4.\nYksil\u00f6lliset palveluntarpeet edellytt\u00e4v\u00e4t paitsi yksil\u00f6llist\u00e4 palvelujen suunnittelua ja\nyhteisty\u00f6t\u00e4 eri tahojen kanssa, my\u00f6s mahdollisuutta tarjota yksil\u00f6llisi\u00e4 palveluja.\nSosiaality\u00f6n n\u00e4k\u00f6kulmasta kiinnostavaksi teemaksi oli asiakkuus: kehitysvammaisen asuessa\nvanhempiensa luona erityishuollon sosiaality\u00f6n asiakkaana on kehitysvammaisen henkil\u00f6n\nsijaan kehitysvammainen henkil\u00f6 perheineen. Asiakkuuden hahmottaminen perhel\u00e4ht\u00f6isesti\nedellytt\u00e4\u00e4 jonkinlaista asenne- tai n\u00e4k\u00f6kulman muutosta nykytilanteeseen verrattuna. Silloin\nty\u00f6n tavoitteena on yksil\u00f6n, t\u00e4ss\u00e4 tapauksessa kehitysvammaisen ihmisen hyvinvoinnin sijaan\nperheen hyvinvointi. Perheiden asiakkuus kehitysvammapalveluissa johtuu perheenj\u00e4senen\nkehitysvammaisuudesta. Kehitysvammapalvelujen asiakkuus ei ole tietoinen, haluttu valinta.\nKehitysvammaisuutta ei ole mahdollista poistaa l\u00e4\u00e4kityksell\u00e4 tai kuntoutuksella, mutta\nsosiaality\u00f6n keinoin perhett\u00e4 voi auttaa l\u00f6yt\u00e4m\u00e4\u00e4n voimavaransa el\u00e4m\u00e4ntilanteessa, jossa\nyhden perheenj\u00e4senen ominaisuus ei ole muutettavissa.", "language": "fi", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Submitted using Plone Publishing form by Hilla M\u00e4kel\u00e4 (himiirma) on 2012-11-07 10:33:21.534080. Form: Admin-lomake Pro gradu -t\u00f6ille (https://kirjasto.jyu.fi/julkaisut/julkaisulomakkeet/admin-lomake-pro-gradu-toille). JyX data:", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Submitted by jyx lomake-julkaisija (jyx-julkaisija@noreply.fi) on 2012-11-07T10:33:21Z\nNo. of bitstreams: 2\nURN:NBN:fi:jyu-201211072875.pdf: 263499 bytes, checksum: 69917fc666e26be2270366fa20b8d8a4 (MD5)\nlicense.html: 107 bytes, checksum: a7d86e598caa500b1b433bbb9dc8ef1c (MD5)", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Made available in DSpace on 2012-11-07T10:33:21Z (GMT). No. of bitstreams: 2\nURN:NBN:fi:jyu-201211072875.pdf: 263499 bytes, checksum: 69917fc666e26be2270366fa20b8d8a4 (MD5)\nlicense.html: 107 bytes, checksum: a7d86e598caa500b1b433bbb9dc8ef1c (MD5)\n Previous issue date: 2006", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.format.extent", "value": "66 sivua", "language": null, "element": "format", "qualifier": "extent", "schema": "dc"}, {"key": "dc.format.mimetype", "value": "application/pdf", "language": null, "element": "format", "qualifier": "mimetype", "schema": "dc"}, {"key": "dc.language.iso", "value": "fin", "language": null, "element": "language", "qualifier": "iso", "schema": "dc"}, {"key": "dc.rights", "value": "In Copyright", "language": "en", "element": "rights", "qualifier": null, "schema": "dc"}, {"key": "dc.subject.other", "value": "ekologinen teoria", "language": null, "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.subject.other", "value": "ekososiaalinen sosiaality\u00f6", "language": null, "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.title", "value": "Arjessa apuna? : vanhempien kokemuksia erityishuollon palvelujen merkityksest\u00e4 arjen sujumisessa", "language": null, "element": "title", "qualifier": null, "schema": "dc"}, {"key": "dc.title.alternative", "value": "Vanhempien kokemuksia erityishuollon palvelujen merkityksest\u00e4 arjen sujumisessa", "language": null, "element": "title", "qualifier": "alternative", "schema": "dc"}, {"key": "dc.type", "value": "master thesis", "language": null, "element": "type", "qualifier": null, "schema": "dc"}, {"key": "dc.identifier.urn", "value": "URN:NBN:fi:jyu-201211072875", "language": null, "element": "identifier", "qualifier": "urn", "schema": "dc"}, {"key": "dc.type.dcmitype", "value": "Text", "language": "en", "element": "type", "qualifier": "dcmitype", "schema": "dc"}, {"key": "dc.type.ontasot", "value": "Pro gradu -tutkielma", "language": "fi", "element": "type", "qualifier": "ontasot", "schema": "dc"}, {"key": "dc.type.ontasot", "value": "Master\u2019s thesis", "language": "en", "element": "type", "qualifier": "ontasot", "schema": "dc"}, {"key": "dc.contributor.faculty", "value": "Yhteiskuntatieteellinen tiedekunta", "language": "fi", "element": "contributor", "qualifier": "faculty", "schema": "dc"}, {"key": "dc.contributor.faculty", "value": "Faculty of Social Sciences", "language": "en", "element": "contributor", "qualifier": "faculty", "schema": "dc"}, {"key": "dc.contributor.department", "value": "Yhteiskuntatieteiden ja filosofian laitos", "language": "fi", "element": "contributor", "qualifier": "department", "schema": "dc"}, {"key": "dc.contributor.department", "value": "Department of Social Sciences and Philosophy", "language": "en", "element": "contributor", "qualifier": "department", "schema": "dc"}, {"key": "dc.contributor.organization", "value": "University of Jyv\u00e4skyl\u00e4", "language": "en", "element": "contributor", "qualifier": "organization", "schema": "dc"}, {"key": "dc.contributor.organization", "value": "Jyv\u00e4skyl\u00e4n yliopisto", "language": "fi", "element": "contributor", "qualifier": "organization", "schema": "dc"}, {"key": "dc.subject.discipline", "value": "Sosiaality\u00f6", "language": "fi", "element": "subject", "qualifier": "discipline", "schema": "dc"}, {"key": "dc.subject.discipline", "value": "Social Work", "language": "en", "element": "subject", "qualifier": "discipline", "schema": "dc"}, {"key": "dc.date.updated", "value": "2012-11-07T10:33:22Z", "language": null, "element": "date", "qualifier": "updated", "schema": "dc"}, {"key": "dc.type.coar", "value": "http://purl.org/coar/resource_type/c_bdcc", "language": null, "element": "type", "qualifier": "coar", "schema": "dc"}, {"key": "dc.rights.accesslevel", "value": "restrictedAccess", "language": "fi", "element": "rights", "qualifier": "accesslevel", "schema": "dc"}, {"key": "dc.type.publication", "value": "masterThesis", "language": null, "element": "type", "qualifier": "publication", "schema": "dc"}, {"key": "dc.subject.oppiainekoodi", "value": "210", "language": null, "element": "subject", "qualifier": "oppiainekoodi", "schema": "dc"}, {"key": "dc.subject.yso", "value": "kehitysvammaisuus", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "perheet", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "lapsiperheet", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "kehitysvammahuolto", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "sosiaality\u00f6", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "Bronfenbrennerin ekologinen teoria", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.format.content", "value": "fulltext", "language": null, "element": "format", "qualifier": "content", "schema": "dc"}, {"key": "dc.rights.url", "value": "https://rightsstatements.org/page/InC/1.0/", "language": null, "element": "rights", "qualifier": "url", "schema": "dc"}, {"key": "dc.rights.accessrights", "value": "Aineistoon p\u00e4\u00e4sy\u00e4 on rajoitettu tekij\u00e4noikeussyist\u00e4. Aineisto on luettavissa Jyv\u00e4skyl\u00e4n yliopiston kirjaston arkistoty\u00f6asemalta. Ks. https://kirjasto.jyu.fi/fi/tyoskentelytilat/laitteet-ja-tilat.", "language": "fi", "element": "rights", "qualifier": "accessrights", "schema": "dc"}, {"key": "dc.rights.accessrights", "value": "This material has a restricted access due to copyright reasons. It can be read at the workstation at Jyv\u00e4skyl\u00e4 University Library reserved for the use of archival materials: https://kirjasto.jyu.fi/en/workspaces/facilities.", "language": "en", "element": "rights", "qualifier": "accessrights", "schema": "dc"}, {"key": "dc.type.okm", "value": "G2", "language": null, "element": "type", "qualifier": "okm", "schema": "dc"}]
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