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[{"key": "dc.contributor.author", "value": "Virtanen, Viliina", "language": "", "element": "contributor", "qualifier": "author", "schema": "dc"}, {"key": "dc.date.accessioned", "value": "2024-12-12T07:24:52Z", "language": null, "element": "date", "qualifier": "accessioned", "schema": "dc"}, {"key": "dc.date.available", "value": "2024-12-12T07:24:52Z", "language": null, "element": "date", "qualifier": "available", "schema": "dc"}, {"key": "dc.date.issued", "value": "2024", "language": "", "element": "date", "qualifier": "issued", "schema": "dc"}, {"key": "dc.identifier.uri", "value": "https://jyx.jyu.fi/handle/123456789/98952", "language": null, "element": "identifier", "qualifier": "uri", "schema": "dc"}, {"key": "dc.description.abstract", "value": "Periytyvyysneuvonta on Sy\u00f6p\u00e4j\u00e4rjest\u00f6jen j\u00e4rjest\u00e4m\u00e4 asiakasl\u00e4ht\u00f6inen prosessi, jonka tarkoituksena on selvitt\u00e4\u00e4, onko neuvontaan hakeutuneella henkil\u00f6ll\u00e4 mahdollisesti periytyv\u00e4 sy\u00f6p\u00e4alttius eli tavallista suurempi riski sairastua sy\u00f6p\u00e4\u00e4n. Nykyisen arvion mukaan noin 5\u201310 prosenttiin sy\u00f6p\u00e4tapauksista liittyy periytyv\u00e4 sy\u00f6p\u00e4alttius. Sy\u00f6p\u00e4 on yleistyv\u00e4 kansanterveydellinen sairaus, jonka yleistymiseen vaikuttaa v\u00e4est\u00f6n ik\u00e4\u00e4ntyminen. Ik\u00e4\u00e4ntyminen on merkitt\u00e4vin sy\u00f6v\u00e4n riskitekij\u00e4.\n\nTutkimuksen tarkoituksena on kuvata hyv\u00e4\u00e4 periytyvyysneuvontaa ja sit\u00e4 edist\u00e4v\u00e4\u00e4 toimintaa neuvontahoitajien kokemana. Tuotettua tietoa voidaan k\u00e4ytt\u00e4\u00e4 periytyvyysneuvonnan yhdenmukaistamista varten.\n\nTutkimus toteutettiin laadullisena haastattelututkimuksena, jonka tutkimusmetodologisena taustana toimii fenomenologiaan pohjautuva teoreettinen sis\u00e4ll\u00f6nanalyysi. Tutkimuksen aineisto ker\u00e4ttiin puolistrukturoiduilla yksil\u00f6haastatteluilla et\u00e4yhteydell\u00e4 kev\u00e4\u00e4ll\u00e4 2024 maalis ja-huhtikuussa. Tutkimusta varten haastateltiin kahdeksaa periytyvyysneuvontahoitajaa Sy\u00f6p\u00e4j\u00e4rjest\u00f6ist\u00e4. Aineisto analysoitiin aineistol\u00e4ht\u00f6isell\u00e4 sis\u00e4ll\u00f6nanalyysill\u00e4. Analyysin tuloksena muodostui kaksi p\u00e4\u00e4luokkaa, kuusi yl\u00e4luokkaa ja 24 alaluokkaa.\n\nTulosten perusteella voidaan todeta, ett\u00e4 neuvontahoitajien kokemukset periytyvyysneuvonnan toteutumisesta ovat hyvi\u00e4 ja heid\u00e4n mielest\u00e4\u00e4n periytyvyysneuvonnan asiakaskohtaamiset ovat aitoja ja asiantuntevia sek\u00e4 periytyvyysneuvonta pohjautuu vankkaan asiantuntijuuteen. Asiantuntijuuden taustalla on muun muassa riitt\u00e4v\u00e4 tuki ja jatkuva koulutus, joka vastaa tietoisuuden lis\u00e4\u00e4ntymiseen ja jatkuvaan oppimiseen. Asiakkaiden tarpeiden ymm\u00e4rt\u00e4minen ja toimivat neuvontak\u00e4yt\u00e4nn\u00f6t ovat keskeisi\u00e4 tekij\u00f6it\u00e4, jotka vaikuttavat periytyvyysneuvonnan onnistumiseen. Tutkimus toi esille neuvontahoitajien kokemuksia, joita voidaan hy\u00f6dynt\u00e4\u00e4 toiminnan kehitt\u00e4misess\u00e4. T\u00e4m\u00e4n tutkimuksen perusteella voidaan todeta, ett\u00e4 periytyvyysneuvontahoitajat kokevat toteuttamansa periytyvyysneuvonnan olevan laadukasta ja arvokasta toimintaa.", "language": "fi", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.abstract", "value": "Genetic counselling is a client-centered process organized by cancer organizations to find out whether a person seeking counselling has a potentially hereditary cancer susceptibility, i.e. a higher than normal risk of developing cancer. Current estimates suggest that around 5-10 % of cancer cases are associated with hereditary cancer susceptibility. Cancer is a growing public health disease, and its prevalence is influenced by an ageing population. Ageing is one of the main risk factors for cancer.\n\nThe aim of the study is to describe good genetic counselling and the activities that promote it, as experienced by counsellors. The aim is to provide information for the harmonization of genetic counselling.\n\nThe research was conducted as a qualitative interview study, using theoretical content analysis based on phenomenology as the research methodology. The data was collected through semi-structured individual interviews held remotely in the spring of 2024 in March-April. Eight genetic counsellors from Cancer Organization in Finland were interviewed for the study. The data was analyzed using inductive content analysis. The analysis resulted in two main categories, six higher-level categories and 24 subcategories.\n\nThe results show that counsellors' experiences of providing counselling are good and that they believe that counselling client encounters are genuine and professional, and that counselling is based on solid expertise. This expertise includes adequate support and ongoing training which responds to increased awareness and continuous learning. An understanding of clients' needs and effective new consultation practices are key factors that contribute to the success of heredity counselling. The study highlighted the experiences of counsellors, which can be used to improve practice. This study shows that counselling on heritability is a valuable and high-quality activity as experienced by counsellors.", "language": "en", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Submitted by Miia Hakanen (mihakane@jyu.fi) on 2024-12-12T07:24:52Z\nNo. of bitstreams: 0", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Made available in DSpace on 2024-12-12T07:24:52Z (GMT). No. of bitstreams: 0\n Previous issue date: 2024", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.format.extent", "value": "61", "language": "", "element": "format", "qualifier": "extent", "schema": "dc"}, {"key": "dc.language.iso", "value": "fin", "language": null, "element": "language", "qualifier": "iso", "schema": "dc"}, {"key": "dc.rights", "value": "In Copyright", "language": "en", "element": "rights", "qualifier": null, "schema": "dc"}, {"key": "dc.title", "value": "Sy\u00f6p\u00e4j\u00e4rjest\u00f6jen hyv\u00e4 periytyvyysneuvonta neuvontahoitajien kokemana", "language": "", "element": "title", "qualifier": null, "schema": "dc"}, {"key": "dc.type", "value": "master thesis", "language": null, "element": "type", "qualifier": null, "schema": "dc"}, {"key": "dc.identifier.urn", "value": "URN:NBN:fi:jyu-202412127774", "language": null, "element": "identifier", "qualifier": "urn", "schema": "dc"}, {"key": "dc.type.ontasot", "value": "Master\u2019s thesis", "language": "en", "element": "type", "qualifier": "ontasot", "schema": "dc"}, {"key": "dc.type.ontasot", "value": "Pro gradu -tutkielma", "language": "fi", "element": "type", "qualifier": "ontasot", "schema": "dc"}, {"key": "dc.contributor.faculty", "value": "Liikuntatieteellinen tiedekunta", "language": "fi", "element": "contributor", "qualifier": "faculty", "schema": "dc"}, {"key": "dc.contributor.faculty", "value": "Faculty of Sport and Health Sciences", "language": "en", "element": "contributor", "qualifier": "faculty", "schema": "dc"}, {"key": "dc.contributor.department", "value": "Liikunta- ja terveystieteet", "language": "fi", "element": "contributor", "qualifier": "department", "schema": "dc"}, {"key": "dc.contributor.department", "value": "Sport and Health Sciences", "language": "en", "element": "contributor", "qualifier": "department", "schema": "dc"}, {"key": "dc.contributor.organization", "value": "Jyv\u00e4skyl\u00e4n yliopisto", "language": "fi", "element": "contributor", "qualifier": "organization", "schema": "dc"}, {"key": "dc.contributor.organization", "value": "University of Jyv\u00e4skyl\u00e4", "language": "en", "element": "contributor", "qualifier": "organization", "schema": "dc"}, {"key": "dc.subject.discipline", "value": "Gerontologia ja kansanterveys", "language": "fi", "element": "subject", "qualifier": "discipline", "schema": "dc"}, {"key": "dc.subject.discipline", "value": "Gerontology and Public Health", "language": "en", "element": "subject", "qualifier": "discipline", "schema": "dc"}, {"key": "yvv.contractresearch.funding", "value": "0", "language": "", "element": "contractresearch", "qualifier": "funding", "schema": "yvv"}, {"key": "dc.type.coar", "value": "http://purl.org/coar/resource_type/c_bdcc", "language": null, "element": "type", "qualifier": "coar", "schema": "dc"}, {"key": "dc.rights.accesslevel", "value": "openAccess", "language": null, "element": "rights", "qualifier": "accesslevel", "schema": "dc"}, {"key": "dc.type.publication", "value": "masterThesis", "language": null, "element": "type", "qualifier": "publication", "schema": "dc"}, {"key": "dc.subject.oppiainekoodi", "value": "50423", "language": "", "element": "subject", "qualifier": "oppiainekoodi", "schema": "dc"}, {"key": "dc.subject.yso", "value": "sy\u00f6p\u00e4taudit", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "perinn\u00f6llisyys", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "ohjaus (neuvonta ja opastus)", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "terveys", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "neuvonta", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "perinn\u00f6lliset taudit", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "periytyvyys", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "kokemukset", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.rights.url", "value": "https://rightsstatements.org/page/InC/1.0/", "language": null, "element": "rights", "qualifier": "url", "schema": "dc"}]
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