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[{"key": "dc.contributor.advisor", "value": "N\u00e4rhi, Kati", "language": "", "element": "contributor", "qualifier": "advisor", "schema": "dc"}, {"key": "dc.contributor.author", "value": "Sinisalo, Vilma", "language": "", "element": "contributor", "qualifier": "author", "schema": "dc"}, {"key": "dc.date.accessioned", "value": "2022-11-24T07:10:49Z", "language": null, "element": "date", "qualifier": "accessioned", "schema": "dc"}, {"key": "dc.date.available", "value": "2022-11-24T07:10:49Z", "language": null, "element": "date", "qualifier": "available", "schema": "dc"}, {"key": "dc.date.issued", "value": "2022", "language": "", "element": "date", "qualifier": "issued", "schema": "dc"}, {"key": "dc.identifier.uri", "value": "https://jyx.jyu.fi/handle/123456789/84066", "language": null, "element": "identifier", "qualifier": "uri", "schema": "dc"}, {"key": "dc.description.abstract", "value": "T\u00e4ss\u00e4 maisterintutkielmassani tarkastelen neuropsykiatrisista h\u00e4iri\u00f6ist\u00e4 k\u00e4rsivien lasten vanhempien kokemuksia\npalveluj\u00e4rjestelm\u00e4n v\u00e4liinputoamisesta. Neuropsykiatrisesti oireilevien lasten ja heid\u00e4n perheidens\u00e4\nasema palveluj\u00e4rjestelm\u00e4ss\u00e4 n\u00e4ytt\u00e4ytyy aiemman tutkimuksen sek\u00e4 julkisen keskustelun valossa heikkona ja\nv\u00e4liinputoamista tapahtuu monien perheiden kohdalla. Tavoitteenani on ollut syvent\u00e4\u00e4 ymm\u00e4rryst\u00e4 ilmi\u00f6st\u00e4\nja olenkin halunnut tarkemmin selvitt\u00e4\u00e4, millaisia v\u00e4liinputoamisen kokemuksia neuropsykiatrisesti oireilevien\nlasten vanhemmilla on.\n\nTutkimusotteeni pohjaa fenomenologiseen tutkimusperinteeseen, joka pyrkii tarkastelemaan asioiden ilmenemist\u00e4\nyksil\u00f6ille heid\u00e4n kokemuksissaan. Tutkimuksen aineisto koostuu seitsem\u00e4st\u00e4 neuropsykiatrisen h\u00e4iri\u00f6n\ndiagnoosin saaneen lapsen vanhemman haastattelusta. Haastattelut on toteutettu narratiivisina haastatteluina\nkerrontaa mahdollisimman v\u00e4h\u00e4n ohjaten, ja haastatteluaineisto on analysoitu fenomenologis-hermeneuttista\nanalyysimenetelm\u00e4\u00e4 k\u00e4ytt\u00e4en. Haastatteluaineisto on pilkottu merkitysyksik\u00f6ihin, joista on muodostettu\nala-, yl\u00e4- ja p\u00e4\u00e4teemoja alustavaan ymm\u00e4rrykseen peilaten.\n\nP\u00e4\u00e4teemoiksi analyysin perusteella muodostuivat palveluj\u00e4rjestelm\u00e4n ep\u00e4kohdat, neuropsykiatristen oireiden\ntunnistamisen pulmat sek\u00e4 perheen rooli. Kaikki haastateltavat kuvasivat palveluj\u00e4rjestelm\u00e4\u00e4 sekavana\nja saamaansa palveluohjausta puutteellisena. Avun hakeminen koettiin ty\u00f6l\u00e4\u00e4ksi ja kuormittavaksi, ja moniammatillinen\nyhteisty\u00f6 puutteelliseksi tai olemattomaksi. Monet vanhemmat kokivat, ett\u00e4 ammattilaiset\neiv\u00e4t ole riitt\u00e4viss\u00e4 m\u00e4\u00e4rin tunnistaneet lapsen oireilun taustasyit\u00e4 tai ottaneet vanhemman huolia vakavasti.\nPerheen rooli suhteessa v\u00e4liinputoamiseen n\u00e4htiin moninaisena. Toisaalta osa vanhemmista koki perheen\np\u00e4rj\u00e4\u00e4v\u00e4n palveluj\u00e4rjestelm\u00e4n n\u00e4k\u00f6kulmasta liian hyvin saadakseen tukea. Toisaalta kuormittuneet vanhemmat\neiv\u00e4t v\u00e4ltt\u00e4m\u00e4tt\u00e4 en\u00e4\u00e4 jaksaneet ottaa tukea vastaan. Vanhemmat tunnistivat my\u00f6s itsess\u00e4\u00e4n neuropsykiatrisia\noireita, mik\u00e4 vaikeutti avun hakemista.\n\nAnalyysiss\u00e4 muodostuneet teemat voidaan vanhempien kokemuksissa n\u00e4hd\u00e4 sek\u00e4 v\u00e4liinputoamisen syin\u00e4\nett\u00e4 osana itse v\u00e4liinputoamista. Nepsy-lasten ja heid\u00e4n perheidens\u00e4 v\u00e4liinputoaminen ei aineiston analyysin\nperusteella n\u00e4ytt\u00e4ydy ajallisesti rajattavana tilana tai tilanteena, vaan jatkuvana prosessina, jossa palveluj\u00e4rjestelm\u00e4\nei huomioi perheen kokonaisvaltaista tuen tarvetta ja perhe joutuu itse etsim\u00e4\u00e4n ja vaatimaan apua\nja tukea usein uupumiseen saakka. V\u00e4liinputoaminen saattoi perheen n\u00e4k\u00f6kulmasta olla hyvinkin aktiivista\ntoimintaa ja perheen asioissa saattoi olla montakin tahoa n\u00e4enn\u00e4isesti auttamassa.", "language": "fi", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Submitted by Paivi Vuorio (paelvuor@jyu.fi) on 2022-11-24T07:10:49Z\nNo. of bitstreams: 0", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Made available in DSpace on 2022-11-24T07:10:49Z (GMT). No. of bitstreams: 0\n Previous issue date: 2022", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.format.extent", "value": "82", "language": "", "element": "format", "qualifier": "extent", "schema": "dc"}, {"key": "dc.format.mimetype", "value": "application/pdf", "language": null, "element": "format", "qualifier": "mimetype", "schema": "dc"}, {"key": "dc.language.iso", "value": "fin", "language": null, "element": "language", "qualifier": "iso", "schema": "dc"}, {"key": "dc.rights", "value": "In Copyright", "language": "en", "element": "rights", "qualifier": null, "schema": "dc"}, {"key": "dc.title", "value": "\u201dOn j\u00e4tetty perheen\u00e4 yksin\u201d : nepsy-lasten vanhempien kokemuksia palveluj\u00e4rjestelm\u00e4n v\u00e4liinputoamisesta", "language": "", "element": "title", "qualifier": null, "schema": "dc"}, {"key": "dc.type", "value": "master thesis", "language": null, "element": "type", "qualifier": null, "schema": "dc"}, 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"Department of Social Sciences and Philosophy", "language": "en", "element": "contributor", "qualifier": "department", "schema": "dc"}, {"key": "dc.contributor.organization", "value": "Jyv\u00e4skyl\u00e4n yliopisto", "language": "fi", "element": "contributor", "qualifier": "organization", "schema": "dc"}, {"key": "dc.contributor.organization", "value": "University of Jyv\u00e4skyl\u00e4", "language": "en", "element": "contributor", "qualifier": "organization", "schema": "dc"}, {"key": "dc.subject.discipline", "value": "Sosiaality\u00f6", "language": "fi", "element": "subject", "qualifier": "discipline", "schema": "dc"}, {"key": "dc.subject.discipline", "value": "Social Work", "language": "en", "element": "subject", "qualifier": "discipline", "schema": "dc"}, {"key": "yvv.contractresearch.funding", "value": "0", "language": "", "element": "contractresearch", "qualifier": "funding", "schema": "yvv"}, {"key": "dc.type.coar", "value": "http://purl.org/coar/resource_type/c_bdcc", 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