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[{"key": "dc.contributor.advisor", "value": "Hautala, Arto", "language": "", "element": "contributor", "qualifier": "advisor", "schema": "dc"}, {"key": "dc.contributor.advisor", "value": "Hiekkala, Sinikka", "language": "", "element": "contributor", "qualifier": "advisor", "schema": "dc"}, {"key": "dc.contributor.author", "value": "Saarim\u00e4ki, Sanna-Mari", "language": "", "element": "contributor", "qualifier": "author", "schema": "dc"}, {"key": "dc.date.accessioned", "value": "2022-08-03T05:40:28Z", "language": null, "element": "date", "qualifier": "accessioned", "schema": "dc"}, {"key": "dc.date.available", "value": "2022-08-03T05:40:28Z", "language": null, "element": "date", "qualifier": "available", "schema": "dc"}, {"key": "dc.date.issued", "value": "2022", "language": "", "element": "date", "qualifier": "issued", "schema": "dc"}, {"key": "dc.identifier.uri", "value": "https://jyx.jyu.fi/handle/123456789/82428", "language": null, "element": "identifier", "qualifier": "uri", "schema": "dc"}, {"key": "dc.description.abstract", "value": "Ymp\u00e4rist\u00f6tekij\u00e4t voivat edist\u00e4\u00e4 tai rajoittaa selk\u00e4ydinvammaisten henkil\u00f6iden osallistumista. Suomessa asuvien selk\u00e4ydinvammaisten henkil\u00f6iden kohtaamia ymp\u00e4rist\u00f6st\u00e4 aiheutuvia rajoitteita ei ole aiemmin tutkittu, mutta niiden selvitt\u00e4minen on olennaista, jotta voidaan kehitt\u00e4\u00e4 mahdollisuuksia yhdenvertaiseen ja esteett\u00f6m\u00e4\u00e4n osallistumiseen. T\u00e4m\u00e4n tutkimuksen tarkoituksena oli selvitt\u00e4\u00e4, miten Nottwil Environmental Factors Inventory Short Form (NEFI-SF) -mittariin kuuluvat ymp\u00e4rist\u00f6tekij\u00e4t vaikeuttivat suomalaisten selk\u00e4ydinvammaisten henkil\u00f6iden osallistumisen mahdollisuuksia heid\u00e4n oman arvionsa mukaan. Lis\u00e4ksi tarkasteltiin, miten sukupuoli, ik\u00e4, vammautumisesta kulunut aika ja vamman vaikeusaste olivat yhteydess\u00e4 ymp\u00e4rist\u00f6tekij\u00f6ist\u00e4 aiheutuviin koettuihin osallistumisrajoitteisiin.\n\nTutkimus oli osa FinSCI, Selk\u00e4ydinvammaisten henkil\u00f6iden terveys ja toimintakyky sek\u00e4 haasteet esteett\u00f6myydess\u00e4 -tutkimusta. Tutkimuksen osallistujien (n = 1772) tiedot ker\u00e4ttiin Helsingin, Tampereen ja Oulun yliopistollisten sairaaloiden selk\u00e4ydinvammapoliklinikoiden potilasrekistereist\u00e4. Sis\u00e4\u00e4nottokriteerit olivat: ik\u00e4 \u2265 16 vuotta, trauma- tai sairausper\u00e4inen selk\u00e4ydinvamma sek\u00e4 vamman vaikeusasteen luokitus American Spinal Injury Association Impairment Scale (AIS) A, B, C tai D. Tutkittaville postitettuun kyselyyn sis\u00e4ltyi selk\u00e4ydin-vammaspesifi NEFI-SF-osio. NEFI-SF-mittari sis\u00e4lt\u00e4\u00e4 14 kysymyst\u00e4 ymp\u00e4rist\u00f6st\u00e4 aiheutuvista osallistumisrajoitteista. NEFI-SF vastausvaihtoehdot ovat \u201dei vaikutusta\u201d (0), \u201dvaikeutti hieman el\u00e4m\u00e4\u00e4ni\u201d (1) ja \u201dvaikeutti selv\u00e4sti el\u00e4m\u00e4\u00e4ni\u201d (2). Mit\u00e4 korkeammat henkil\u00f6n yhteenlasketut NEFI-SF kokonaispisteet ovat (asteikko 0\u201328), sit\u00e4 enemm\u00e4n h\u00e4n kokee ymp\u00e4rist\u00f6tekij\u00f6iden rajoittavan el\u00e4m\u00e4\u00e4ns\u00e4. Vastauksia analysoitiin tilastollisesti ei-parametrisilla testeill\u00e4 ja multinomiaalisilla logistisilla regressiomalleilla.\n\nFinSCI-kyselyyn vastasi 884 henkil\u00f6\u00e4 (vastausprosentti 50). Heist\u00e4 NEFI-SF-kysymyksiin vastasi 880 henkil\u00f6\u00e4. V\u00e4h\u00e4ist\u00e4 haittaa raportoitiin p\u00e4\u00e4s\u00e4\u00e4nt\u00f6isesti enemm\u00e4n kuin huomattavaa haittaa. Eniten vastaajien el\u00e4m\u00e4\u00e4 vaikeutti ilmasto, jonka koki rajoitteena 72 % ja vakavana rajoitteena 44 % vastaajista. Julkisten tilojen esteellisyydess\u00e4 luvut olivat 59 % ja 24 %, haasteissa yst\u00e4vien ja sukulaisten koteihin p\u00e4\u00e4semisess\u00e4 46 % ja 18 % ja pitkien matkojen liikkumisessa 45 % ja 20 %. Taloudellinen tilanne, apuv\u00e4lineiden puute lyhyit\u00e4 matkoja liikuttaessa sek\u00e4 kansallinen lains\u00e4\u00e4d\u00e4nt\u00f6 rajoittivat yhteiskuntaan osallistumista nelj\u00e4ll\u00e4 kymmenest\u00e4 vastaajasta. V\u00e4hiten osallistumista rajoittivat ymp\u00e4rist\u00f6n asenteet. Vastaajien NEFI-SF kokonaispisteet vaihtelivat v\u00e4lill\u00e4 0\u201327 (mediaani 5, keskiarvo 6,3). Naissukupuoli ja vamman vakavampi vaikeusaste AIS A, B tai C olivat yhteydess\u00e4 korkeampiin kokonaispisteisiin.\n\nIlmasto, julkisten ja yksityisten tilojen esteellisyys, haasteet liikkumisessa sek\u00e4 taloudellinen tilanne rajoittivat merkitt\u00e4vimmin suomalaisten selk\u00e4ydinvammaisten henkil\u00f6iden osallis-tumista. Eniten rajoitteita kokivat naiset sek\u00e4 vaikeammin vammautuneet henkil\u00f6t. Tutkimuksen tulokset tuovat p\u00e4\u00e4t\u00f6ksentekij\u00f6iden ty\u00f6n tueksi tietoa selk\u00e4ydinvammaisten henkil\u00f6iden kohtaamista ymp\u00e4rist\u00f6n rajoitteista. T\u00e4t\u00e4 tietoa voidaan hy\u00f6dynt\u00e4\u00e4 yhdenvertaisen ja esteett\u00f6m\u00e4n osallistumisen mahdollisuuksien parantamiseksi Suomessa.", "language": "fi", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.abstract", "value": "Environmental factors may be either facilitators or barriers to participation for persons with spinal cord injury (SCI). In Finland environmental barriers (EB) that the population with SCI encounter have never been studied. However, investigating EBs is pivotal in order to enable equal and barrier-free societal participation for the people with SCI. Once the EBs causing most hindrance are identified, it is possible to work towards minimising their impact on the lives of people with SCI. This study aimed at finding out, based on the Nottwil Environmen-tal Factors Inventory Short Form (NEFI-SF), which EBs made the daily life and participation in society harder for the Finnish population with SCI. We also compared the prevalence of encountering EBs in the Finnish population with SCI in relation to gender, age, time since injury, and severity of SCI.\n\nThis study was part of the Finnish Spinal Cord Injury study (FinSCI). Participants (n = 1772) were recruited from the registers of Helsinki, Tampere and Oulu University Hospital SCI outpatient clinics that are responsible for the lifelong care of people with SCI in Finland. Patients selected for the study were at least 16 years old and had a non-traumatic or traumat-ic SCI classified with the American Spinal Injury Association Impairment Scale (AIS) grade A, B, C, or D. A questionnaire was posted to the participants, including the SCI-specific NEFI-SF measure, which consists of 14 items assessing environmental barriers to participation. Each NEFI-SF item is scored \u201cno influence\u201d (0), \u201cmade my life a little harder\u201d (1), or \u201cmade my life a lot harder\u201d (2). The higher the total score (range 0\u201328), the more EBs are perceived. Nonparametric tests and multinomial logistic regression models were utilised for statistical analyses.\n\nThe FinSCI survey response rate was 50%, and 880 individuals responded the NEFI-SF items. Minor EBs were reported generally more often than major ones. Climate was per-ceived as a barrier by 72% and a serious barrier by 44% of the respondents. Regarding public access the statistics were 59% and 24%, private home access 46% and 18%, and long-distance transport 45% and 20%. Finances, lack of assistive devices in short-distance transport, and political decisions restricted the participation of four out of ten respondents. Attitudes of close people were the least reported EBs. The NEFI-SF total scores ranged be-tween 0 and 27 (median 5, mean 6,3). Women and those more severely injured (AIS A, B and C) had higher NEFI-SF total scores.\n\nClimate, access to public and private places, challenges with transport, finances, and political decisions were the most often perceived environmental barriers restricting participation in the Finnish population with SCI. Women and those more severely injured experienced more barriers than other respondents. Most EBs that were prominent causes of impediment are modifiable. This study revealed valuable data on EBs experienced by the Finnish population with SCI. The policymakers can take advantage of this information when planning how to improve possibilities of equal, barrier-free participation in Finland. Reducing the effects of the most common EBs on the lives of persons with SCI should be focused on.", "language": "en", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Submitted by Paivi Vuorio (paelvuor@jyu.fi) on 2022-08-03T05:40:27Z\nNo. of bitstreams: 0", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Made available in DSpace on 2022-08-03T05:40:28Z (GMT). No. of bitstreams: 0\n Previous issue date: 2022", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.format.extent", "value": "69", "language": "", "element": "format", "qualifier": "extent", "schema": "dc"}, {"key": "dc.format.mimetype", "value": "application/pdf", "language": null, "element": "format", "qualifier": "mimetype", "schema": "dc"}, {"key": "dc.language.iso", "value": "fin", "language": null, "element": "language", "qualifier": "iso", "schema": "dc"}, {"key": "dc.rights", "value": "In Copyright", "language": "en", "element": "rights", "qualifier": null, "schema": "dc"}, {"key": "dc.subject.other", "value": "rajoitteet", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.subject.other", "value": "NEFI-SF", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.title", "value": "Selk\u00e4ydinvammaisten henkil\u00f6iden kokemukset osallistumista rajoittavista ymp\u00e4rist\u00f6tekij\u00f6ist\u00e4 Suomessa (FinSCI-tutkimus)", "language": "", "element": "title", "qualifier": null, "schema": "dc"}, {"key": "dc.type", "value": "master thesis", "language": null, "element": "type", "qualifier": null, "schema": "dc"}, {"key": "dc.identifier.urn", "value": "URN:NBN:fi:jyu-202208033982", "language": "", "element": "identifier", "qualifier": "urn", "schema": "dc"}, {"key": "dc.type.ontasot", "value": "Pro gradu -tutkielma", "language": "fi", "element": "type", "qualifier": "ontasot", "schema": "dc"}, {"key": "dc.type.ontasot", "value": "Master\u2019s thesis", "language": "en", "element": "type", "qualifier": "ontasot", "schema": "dc"}, {"key": "dc.contributor.faculty", "value": "Liikuntatieteellinen tiedekunta", "language": "fi", "element": "contributor", "qualifier": "faculty", "schema": "dc"}, {"key": "dc.contributor.faculty", "value": "Faculty of Sport and Health Sciences", "language": "en", "element": "contributor", "qualifier": "faculty", "schema": "dc"}, {"key": "dc.contributor.department", "value": "Liikunta- ja terveystieteet", "language": "fi", "element": "contributor", "qualifier": "department", "schema": "dc"}, {"key": "dc.contributor.department", "value": "Sport and Health Sciences", "language": "en", "element": "contributor", "qualifier": "department", "schema": "dc"}, {"key": "dc.contributor.organization", "value": "Jyv\u00e4skyl\u00e4n yliopisto", "language": "fi", "element": "contributor", "qualifier": "organization", "schema": "dc"}, {"key": "dc.contributor.organization", "value": "University of Jyv\u00e4skyl\u00e4", "language": "en", "element": "contributor", "qualifier": "organization", "schema": "dc"}, {"key": "dc.subject.discipline", "value": "Fysioterapia", "language": "fi", "element": "subject", "qualifier": "discipline", "schema": "dc"}, {"key": "dc.subject.discipline", "value": "Physiotherapy", "language": "en", "element": "subject", "qualifier": "discipline", "schema": "dc"}, {"key": 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"oppiainekoodi", "schema": "dc"}, {"key": "dc.subject.yso", "value": "itsearviointi", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "selk\u00e4ydinvammaiset", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "osallistuminen", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "toimintakyky", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "selk\u00e4ydinvammat", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "liikuntaesteiset", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "ymp\u00e4rist\u00f6tekij\u00e4t", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.format.content", "value": "fulltext", "language": null, "element": "format", "qualifier": "content", "schema": "dc"}, {"key": "dc.rights.url", "value": "https://rightsstatements.org/page/InC/1.0/", "language": null, "element": "rights", "qualifier": "url", "schema": "dc"}, {"key": "dc.rights.accessrights", "value": "The author has not given permission to make the work publicly available electronically. Therefore the material can be read only at the archival workstation at Jyv\u00e4skyl\u00e4 University Library (https://kirjasto.jyu.fi/collections/archival-workstation).", "language": "en", "element": "rights", "qualifier": "accessrights", "schema": "dc"}, {"key": "dc.rights.accessrights", "value": "Tekij\u00e4 ei ole antanut lupaa avoimeen julkaisuun, joten aineisto on luettavissa vain Jyv\u00e4skyl\u00e4n yliopiston kirjaston arkistoty\u00f6semalta. Ks. https://kirjasto.jyu.fi/kokoelmat/arkistotyoasema..", "language": "fi", "element": "rights", "qualifier": "accessrights", "schema": "dc"}, {"key": "dc.type.okm", "value": "G2", "language": null, "element": "type", "qualifier": "okm", "schema": "dc"}]
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