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[{"key": "dc.contributor.advisor", "value": "Hautala, Arto", "language": "", "element": "contributor", "qualifier": "advisor", "schema": "dc"}, {"key": "dc.contributor.advisor", "value": "Hiekkala, Sinikka", "language": "", "element": "contributor", "qualifier": "advisor", "schema": "dc"}, {"key": "dc.contributor.author", "value": "Puranen, Kristiina", "language": "", "element": "contributor", "qualifier": "author", "schema": "dc"}, {"key": "dc.date.accessioned", "value": "2022-05-20T06:48:23Z", "language": null, "element": "date", "qualifier": "accessioned", "schema": "dc"}, {"key": "dc.date.available", "value": "2022-05-20T06:48:23Z", "language": null, "element": "date", "qualifier": "available", "schema": "dc"}, {"key": "dc.date.issued", "value": "2022", "language": "", "element": "date", "qualifier": "issued", "schema": "dc"}, {"key": "dc.identifier.uri", "value": "https://jyx.jyu.fi/handle/123456789/81190", "language": null, "element": "identifier", "qualifier": "uri", "schema": "dc"}, {"key": "dc.description.abstract", "value": "Selk\u00e4ydinvamman hoito oli ennen vuoden 2011 terveydenhuoltolain uudistusta hajanaista. \nVuonna 2011 valtioneuvoston asetuksen mukaisesti akuuttivaiheen hoito, v\u00e4lit\u00f6n kuntoutus \nsek\u00e4 moniammatillinen hoito ja elinik\u00e4inen seuranta keskitettiin kolmeen yliopistolliseen \nsairaalaan; Helsingin (HUS), Tampereen (Tays) ja Oulun (OYS) yliopistolliseen sairaalaan. \nT\u00e4m\u00e4n rakenneuudistuksen j\u00e4lkeen selk\u00e4ydinvammaisten henkil\u00f6iden palvelukokemuksia ei \nole tarkasteltu. Ennen vuoden 2011 uudistusta on raportoitu terveyspalvelukokemuksia\nainoastaan henkil\u00f6ill\u00e4, joiden selk\u00e4ydinvamman taustalla on ollut trauma. Palveluiden \nkehitt\u00e4miseksi ja lain toteutumisen arvioimiseksi on t\u00e4rke\u00e4\u00e4 saada asiakkailta kokemusper\u00e4ist\u00e4 \ntietoa. T\u00e4m\u00e4n tutkimuksen tarkoituksena oli selvitt\u00e4\u00e4 suomalaisten selk\u00e4ydinvammaisten \nhenkil\u00f6iden kokemuksia sosiaali- ja terveyspalveluista sek\u00e4 taustamuuttujien yhteytt\u00e4 \nkokemuksiin.\nTutkimuksessa hy\u00f6dynnettiin FinSCI (Finnish Spinal Cord Injury) poikkileikkaustutkimuksen\nkyselyaineistoa (n=1772). FinSCI-kyselyn vastaajat poimittiin HUS:n, Tays:n ja OYS:n \nselk\u00e4ydinvammapoliklinikoiden asiakkaista. Kysymykset, jotka k\u00e4sitteliv\u00e4t sosiaali- ja \nterveyspalvelukokemuksia, valittiin edelleen kehitett\u00e4v\u00e4ksi Terveyden ja hyvinvoinnin \nlaitoksen FinSote-tutkimuksesta, joka on kansallinen terveys-, hyvinvointi- ja palvelutukimus.\nAnalyysi toteutettiin kuvailevin muuttujin ja logistisella regressioanalyysill\u00e4.\nKyselytutkimuksen vastausprosentti oli 50 (n=884). Selk\u00e4ydinvammaisten henkil\u00f6iden \nkokemukset sosiaali- ja terveyspalveluista olivat p\u00e4\u00e4osin my\u00f6nteisi\u00e4. My\u00f6nteisin\u00e4 \nkokemuksina korostuivat terveyspalveluk\u00e4ynnit ja potilaan ja henkil\u00f6kunnan v\u00e4linen toiminta. \nTaloudelliset tekij\u00e4t eiv\u00e4t vaikeuttaneet suurimmalla osalla hoitoon p\u00e4\u00e4sy\u00e4. Kielteisin kokemus \nliittyi palveluprosessin sujumattomuuteen. Taustamuuttujien yhteys kokemuksiin vaihteli. \nEniten kokemuksiin olivat yhteydess\u00e4 muut taustamuuttujat, kuin selk\u00e4ydinvammaa kuvailevat \nmuuttujat. Tuloksista oli n\u00e4ht\u00e4vill\u00e4, ett\u00e4 yksin asuvilla ja naisilla ja henkil\u00f6ill\u00e4, joiden \nselk\u00e4ydinvamma oli sairausper\u00e4inen, vaikuttaisi olevan suurempi todenn\u00e4k\u00f6isyys kielteiseen \nkokemukseen. Verkostot ja sosiaalinen tuki n\u00e4ytt\u00e4isiv\u00e4t suojelevan kielteisilt\u00e4 kokemuksilta. \nTutkimus osoittaa, ett\u00e4 selk\u00e4ydinvammaisten henkil\u00f6iden kokemukset sosiaali- ja \nterveyspalveluista vuonna 2019 ennen koronapandemiaa olivat p\u00e4\u00e4osin my\u00f6nteisi\u00e4 ja erityisesti \npalveluk\u00e4ynnit koettiin my\u00f6nteisin\u00e4. Rakenteellisissa tekij\u00f6iss\u00e4 ja hoidon kokonaisvaltaisessa \nhuomioimisessa on edelleen kehitett\u00e4v\u00e4\u00e4. Kielteisiin kokemuksiin olivat yhteydess\u00e4 eniten \nmuut kuin selk\u00e4ydinvammaa kuvailevat tekij\u00e4t, mutta henkil\u00f6ill\u00e4, joiden selk\u00e4ydinvamman \ntaustalla oli sairaus, oli suurempi todenn\u00e4k\u00f6isyys kielteiseen kokemukseen, kuin henkil\u00f6ill\u00e4, \njoiden selk\u00e4ydinvamma oli traumaper\u00e4inen. Tulevaisuudessa palveluissa tulisi kiinnitt\u00e4\u00e4 \nhuomioita yhdenvertaisuuteen. Erityisesti tulisi huomioida palvelutoimintojen sujuvuus \nhenkil\u00f6ill\u00e4, joiden selk\u00e4ydinvamma on sairauden aiheuttama. Jatkossa olisi perusteltua vertailla \nkansallisesti selk\u00e4ydinvammaisten henkil\u00f6iden kokemuksia suhteessa muuhun v\u00e4est\u00f6\u00f6n, ja \nlis\u00e4ksi kansainv\u00e4lisesti vertailla selk\u00e4ydinvammapoliklinikoilta saatuja kokemuksia.", "language": "fi", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.abstract", "value": "Health Care Act reform took place in 2011. Before this the care of people with spinal cord \ninjury was scattered. The acute care, subacute rehabilitation and multi-professional care along \nwith life-time follow-up was centralized into three University Hospitals: Helsinki (HUS), \nTampere (Tays) and Oulu (OYS) according to Government decree in 2011. After this reform, \nthere hasn\u2019t been any studies that would explore social and health care service experiences \namong individuals with spinal cord injury. Before this reform, there has been only one study \nthat reported the experiences of health care services with people who had experienced traumatic \nspinal cord injury. It is important to find out, what kind of experiences our clients have aiming \nto develop services and assess fulfilment of the laws in Finland. The purpose of this study was \nto assess experiences on social and health care services in Finnish people with spinal cord \ninjury. We also evaluated the relationships between background variables and experiences.\nThe data for this cross-sectional study was taken from the FinSCI (Finnish Spinal Cord Injury)-\nstudy (n=1772). Study participants were from the three spinal cord injury outpatient clinics \nregisters: HUS, Tays and OYS. Questions related to social and health care services were chosen \nfrom the FinSote-study that is National Survey of Health, Well-being and Service. The Finnish \nInstitute for Health and Welfare (THL) is organizing the FinSote-study. These questions were \nmodified suitable for FinSCI-study. Analyses were done by descriptive variables and logistic \nregression analysis.\nThe response rate in the survey was 50 % (n=884). Experiences of social and health care \nservices were mainly positivise. Health care service visits and interaction between staff and \npatient were the most positive experiences. Also, most of the respondents did not have any \nfinancial challenges to receive treatment. The most negative experience was connected to \nprocesses of services. There was variation between connections of background variables and \nexperiences. Background variables related to spinal cord injury itself, were connected to \nexperiences fewer times than other background variables such as housing form and gender. \nThere was a higher probability for negative experience if person was living alone, was a woman \nor spinal cord injury was caused by non-trauma. The networks and social support would seem \nto preserve from negative experiences. \nThis study shows that people who have spinal cord injury had mainly positive social and health \ncare service experiences in the year 2019 before coronavirus pandemic. Especially service visits \nwere found positive. Still, we need to develop structural factors and holistic treatment. To \nnegative experiences were connected other background variables more than background \nvariables explaining spinal cord injury. Individuals that had non-traumatic spinal cord injury \nhad higher probability for negative experience. In future we should pay more attention to equal \nservices. Especially we should acknowledge service functions on people, who haves non traumatic spinal cord injury and make these service functions more fluent. Next it is warranted \nto compare experiences nationally between population and individuals that have spinal cord \ninjury and internationally between spinal cord injury centers.", "language": "en", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Submitted by Paivi Vuorio (paelvuor@jyu.fi) on 2022-05-20T06:48:23Z\nNo. of bitstreams: 0", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Made available in DSpace on 2022-05-20T06:48:23Z (GMT). No. of bitstreams: 0\n Previous issue date: 2022", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.format.extent", "value": "50", "language": "", "element": "format", "qualifier": "extent", "schema": "dc"}, {"key": "dc.format.mimetype", "value": "application/pdf", "language": null, "element": "format", "qualifier": "mimetype", "schema": "dc"}, {"key": "dc.language.iso", "value": "fin", "language": null, "element": "language", "qualifier": "iso", "schema": "dc"}, {"key": "dc.rights", "value": "In Copyright", "language": "en", "element": "rights", "qualifier": null, "schema": "dc"}, {"key": "dc.subject.other", "value": "sosiaali- ja terveyspalvelukokemukset", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.title", "value": "Selk\u00e4ydinvammaisten henkil\u00f6iden kokemuksia sosiaali- ja terveyspalveluista (FinSCI-tutkimus)", "language": "", "element": "title", "qualifier": null, "schema": "dc"}, {"key": "dc.type", "value": "master thesis", "language": null, "element": "type", "qualifier": null, "schema": "dc"}, {"key": "dc.identifier.urn", "value": "URN:NBN:fi:jyu-202205202822", "language": "", "element": "identifier", "qualifier": "urn", "schema": "dc"}, {"key": "dc.type.ontasot", "value": "Pro gradu -tutkielma", "language": "fi", "element": "type", "qualifier": "ontasot", "schema": "dc"}, {"key": "dc.type.ontasot", "value": "Master\u2019s thesis", "language": "en", "element": "type", "qualifier": "ontasot", "schema": "dc"}, {"key": "dc.contributor.faculty", "value": "Liikuntatieteellinen tiedekunta", "language": "fi", "element": "contributor", "qualifier": "faculty", "schema": "dc"}, {"key": "dc.contributor.faculty", "value": "Faculty of Sport and Health Sciences", "language": "en", "element": "contributor", "qualifier": "faculty", "schema": "dc"}, {"key": "dc.contributor.department", "value": "Liikunta- ja terveystieteet", "language": "fi", "element": "contributor", "qualifier": "department", "schema": "dc"}, {"key": "dc.contributor.department", "value": "Sport and Health Sciences", "language": "en", "element": "contributor", "qualifier": "department", "schema": "dc"}, {"key": "dc.contributor.organization", "value": "Jyv\u00e4skyl\u00e4n yliopisto", "language": "fi", "element": "contributor", "qualifier": "organization", "schema": "dc"}, {"key": "dc.contributor.organization", "value": "University of Jyv\u00e4skyl\u00e4", "language": "en", "element": "contributor", "qualifier": "organization", "schema": "dc"}, {"key": "dc.subject.discipline", "value": "Fysioterapia", "language": "fi", "element": "subject", "qualifier": "discipline", "schema": "dc"}, {"key": "dc.subject.discipline", "value": "Physiotherapy", "language": "en", "element": "subject", "qualifier": "discipline", "schema": "dc"}, {"key": "yvv.contractresearch.collaborator", "value": "public", "language": "", "element": "contractresearch", "qualifier": "collaborator", "schema": "yvv"}, {"key": "yvv.contractresearch.funding", "value": "0", "language": "", "element": "contractresearch", "qualifier": "funding", "schema": "yvv"}, {"key": "yvv.contractresearch.initiative", "value": "student", "language": "", "element": "contractresearch", "qualifier": "initiative", "schema": "yvv"}, {"key": "dc.type.coar", "value": "http://purl.org/coar/resource_type/c_bdcc", "language": null, "element": "type", "qualifier": "coar", "schema": "dc"}, {"key": "dc.rights.accesslevel", "value": "restrictedAccess", "language": null, "element": "rights", "qualifier": "accesslevel", "schema": "dc"}, {"key": "dc.type.publication", "value": "masterThesis", "language": null, "element": "type", "qualifier": "publication", "schema": "dc"}, {"key": "dc.subject.oppiainekoodi", "value": "50422", "language": "", "element": "subject", "qualifier": "oppiainekoodi", "schema": "dc"}, {"key": "dc.subject.yso", "value": "terveyspalvelut", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "sosiaalipalvelut", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "selk\u00e4ydinvammaiset", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "kokemukset", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "palvelut", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.format.content", "value": "fulltext", "language": null, "element": "format", "qualifier": "content", "schema": "dc"}, {"key": "dc.rights.url", "value": "https://rightsstatements.org/page/InC/1.0/", "language": null, "element": "rights", "qualifier": "url", "schema": "dc"}, {"key": "dc.rights.accessrights", "value": "The author has not given permission to make the work publicly available electronically. Therefore the material can be read only at the archival workstation at Jyv\u00e4skyl\u00e4 University Library (https://kirjasto.jyu.fi/collections/archival-workstation).", "language": "en", "element": "rights", "qualifier": "accessrights", "schema": "dc"}, {"key": "dc.rights.accessrights", "value": "Tekij\u00e4 ei ole antanut lupaa avoimeen julkaisuun, joten aineisto on luettavissa vain Jyv\u00e4skyl\u00e4n yliopiston kirjaston arkistoty\u00f6semalta. Ks. https://kirjasto.jyu.fi/kokoelmat/arkistotyoasema..", "language": "fi", "element": "rights", "qualifier": "accessrights", "schema": "dc"}, {"key": "dc.type.okm", "value": "G2", "language": null, "element": "type", "qualifier": "okm", "schema": "dc"}]
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