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[{"key": "dc.contributor.advisor", "value": "Mets\u00e4pelto, Riitta-Leena", "language": "", "element": "contributor", "qualifier": "advisor", "schema": "dc"}, {"key": "dc.contributor.author", "value": "Rantanen, Iiris", "language": "", "element": "contributor", "qualifier": "author", "schema": "dc"}, {"key": "dc.date.accessioned", "value": "2022-05-04T05:01:19Z", "language": null, "element": "date", "qualifier": "accessioned", "schema": "dc"}, {"key": "dc.date.available", "value": "2022-05-04T05:01:19Z", "language": null, "element": "date", "qualifier": "available", "schema": "dc"}, {"key": "dc.date.issued", "value": "2022", "language": "", "element": "date", "qualifier": "issued", "schema": "dc"}, {"key": "dc.identifier.uri", "value": "https://jyx.jyu.fi/handle/123456789/80874", "language": null, "element": "identifier", "qualifier": "uri", "schema": "dc"}, {"key": "dc.description.abstract", "value": "Lapsen Asperger-diagnoosi vaikuttaa koko perheen el\u00e4m\u00e4\u00e4n. Onkin t\u00e4rke\u00e4\u00e4 syvent\u00e4\u00e4 ymm\u00e4rryst\u00e4 Asperger-henkil\u00f6iden el\u00e4m\u00e4nkulusta perhekokonaisuuden kontekstissa eri perheenj\u00e4senten silmin. T\u00e4ss\u00e4 tutkimuksessa tarkasteltiin yhden, tutkimushetkell\u00e4 nuoren Asperger-diagnoosin saaneen aikuisen ik\u00e4-vaiheita ja Asperger-piirteiden ilmenemist\u00e4 niiss\u00e4. Lis\u00e4ksi haluttiin tietoa perheenj\u00e4senten tuntemuksista Asperger-l\u00e4heisen rinnalla el\u00e4misest\u00e4. Aineisto ker\u00e4ttiin narratiivisella haastattelulla yhden perheen kaikilta perheenj\u00e4senilt\u00e4 (N = 4) ja analysoitiin narratiivien analyysilla. Ensimm\u00e4iseen tutkimuskysymykseen vastaamiseen Asperger-piirteiden n\u00e4kymisest\u00e4 eri ik\u00e4vaiheissa k\u00e4ytettiin teoriaohjaavaa sis\u00e4ll\u00f6nanalyysia, ja toiseen tutkimuskysymykseen perheenj\u00e4senten tunteista k\u00e4ytettiin aineistol\u00e4ht\u00f6ist\u00e4 sis\u00e4ll\u00f6nanalyysia sek\u00e4 Labovin kertomuksen rakennemallia.\n\nTulokset osoittivat, ett\u00e4 Aspergerin oireyhtym\u00e4n piirteet ovat vaikuttaneet paljon tutkittavan el\u00e4m\u00e4\u00e4n eri ik\u00e4vaiheissa. Perheenj\u00e4senet taas kokivat monia huolia Asperger-l\u00e4heisest\u00e4\u00e4n. Huolenaiheina olivat koulukiusaaminen, yksin\u00e4isyys ja tulevaisuudessa p\u00e4rj\u00e4\u00e4minen. \u00c4idin narratiivista erottui eniten huolen s\u00e4vytt\u00e4mi\u00e4 tunteita, mutta my\u00f6s veli oli aina tuntenut huolta Asperger-veljest\u00e4\u00e4n. Is\u00e4n narratiivi poikkesi \u00e4idin ja veljen narratiivista siten, ett\u00e4 h\u00e4n oli luottanut lapsensa p\u00e4rj\u00e4\u00e4miseen kaikissa ik\u00e4vaiheissa. \n\nTutkimuksen perusteella on t\u00e4rke\u00e4\u00e4, ett\u00e4 Asperger-lapsella on v\u00e4hint\u00e4\u00e4n yksi l\u00e4heinen, joka tunnistaa autistiset piirteet ja niihin liittyv\u00e4t avuntarpeet, jotta henkil\u00f6 saa tarpeeksi kuntouttavaa tukea. Asperger-henkil\u00f6ille tulisi j\u00e4rjest\u00e4\u00e4 enemm\u00e4n tukea aikuisuudessa ty\u00f6llistymisen tukemiseen, mik\u00e4 v\u00e4hent\u00e4isi my\u00f6s perheen huolta Asperger-henkil\u00f6n p\u00e4rj\u00e4\u00e4misest\u00e4. Tutkimuksen avulla perheenj\u00e4senten tarinoiden n\u00e4kyv\u00e4ksi tekeminen voi toimia vertaistukena niille perheille, joissa lapsella on diagnosoitu Aspergerin oireyhtym\u00e4 tai autismin kirjo.", "language": "fi", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Submitted by Paivi Vuorio (paelvuor@jyu.fi) on 2022-05-04T05:01:19Z\nNo. of bitstreams: 0", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Made available in DSpace on 2022-05-04T05:01:19Z (GMT). No. of bitstreams: 0\n Previous issue date: 2022", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.format.extent", "value": "80", "language": "", "element": "format", "qualifier": "extent", "schema": "dc"}, {"key": "dc.format.mimetype", "value": "application/pdf", "language": null, "element": "format", "qualifier": "mimetype", "schema": "dc"}, {"key": "dc.language.iso", "value": "fin", "language": null, "element": "language", "qualifier": "iso", "schema": "dc"}, {"key": "dc.rights", "value": "In Copyright", "language": "en", "element": "rights", "qualifier": null, "schema": "dc"}, {"key": "dc.subject.other", "value": "huoli", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.title", "value": "\u201dVaikeuksista voittoon\u201d : perheenj\u00e4senten narratiiveja Asperger-l\u00e4heisen kasvusta lapsuudesta aikuisuuteen", "language": "", "element": "title", "qualifier": null, "schema": "dc"}, {"key": "dc.type", "value": "master thesis", "language": null, "element": "type", "qualifier": null, "schema": "dc"}, {"key": "dc.identifier.urn", "value": "URN:NBN:fi:jyu-202205042537", "language": "", "element": "identifier", "qualifier": "urn", "schema": "dc"}, {"key": "dc.type.ontasot", "value": "Pro gradu -tutkielma", "language": "fi", "element": "type", "qualifier": "ontasot", "schema": "dc"}, {"key": "dc.type.ontasot", "value": "Master\u2019s thesis", "language": "en", "element": "type", "qualifier": "ontasot", "schema": "dc"}, {"key": "dc.contributor.faculty", "value": "Kasvatustieteiden ja psykologian tiedekunta", "language": "fi", "element": "contributor", "qualifier": "faculty", "schema": "dc"}, {"key": "dc.contributor.faculty", "value": "Faculty of Education and Psychology", "language": "en", "element": "contributor", "qualifier": "faculty", "schema": "dc"}, {"key": "dc.contributor.department", "value": "Opettajankoulutuslaitos", "language": "fi", "element": "contributor", "qualifier": "department", "schema": "dc"}, {"key": "dc.contributor.department", "value": "Department of Teacher Education", "language": "en", "element": "contributor", "qualifier": "department", "schema": "dc"}, {"key": "dc.contributor.organization", "value": "Jyv\u00e4skyl\u00e4n yliopisto", "language": "fi", "element": "contributor", "qualifier": "organization", "schema": "dc"}, {"key": "dc.contributor.organization", "value": "University of Jyv\u00e4skyl\u00e4", "language": "en", "element": "contributor", "qualifier": "organization", "schema": "dc"}, {"key": "dc.subject.discipline", "value": "Luokanopettajakoulutus", "language": "fi", "element": "subject", "qualifier": "discipline", "schema": "dc"}, {"key": "dc.subject.discipline", "value": "Teacher Education", "language": "en", "element": "subject", "qualifier": "discipline", "schema": "dc"}, {"key": "yvv.contractresearch.funding", "value": "0", "language": "", "element": "contractresearch", "qualifier": "funding", "schema": "yvv"}, {"key": "dc.type.coar", "value": "http://purl.org/coar/resource_type/c_bdcc", "language": null, "element": "type", "qualifier": "coar", "schema": "dc"}, {"key": "dc.rights.accesslevel", "value": "restrictedAccess", "language": null, "element": "rights", "qualifier": "accesslevel", "schema": "dc"}, {"key": "dc.type.publication", "value": "masterThesis", "language": null, "element": "type", "qualifier": "publication", "schema": "dc"}, {"key": "dc.subject.oppiainekoodi", "value": "103", "language": "", "element": "subject", "qualifier": "oppiainekoodi", "schema": "dc"}, {"key": "dc.subject.yso", "value": "stressi", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "Aspergerin oireyhtym\u00e4", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "autismikirjon h\u00e4iri\u00f6t", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "perheet", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.format.content", "value": "fulltext", "language": null, "element": "format", "qualifier": "content", "schema": "dc"}, {"key": "dc.rights.url", "value": "https://rightsstatements.org/page/InC/1.0/", "language": null, "element": "rights", "qualifier": "url", "schema": "dc"}, {"key": "dc.rights.accessrights", "value": "The author has not given permission to make the work publicly available electronically. Therefore the material can be read only at the archival workstation at Jyv\u00e4skyl\u00e4 University Library (https://kirjasto.jyu.fi/collections/archival-workstation).", "language": "en", "element": "rights", "qualifier": "accessrights", "schema": "dc"}, {"key": "dc.rights.accessrights", "value": "Tekij\u00e4 ei ole antanut lupaa avoimeen julkaisuun, joten aineisto on luettavissa vain Jyv\u00e4skyl\u00e4n yliopiston kirjaston arkistoty\u00f6semalta. Ks. https://kirjasto.jyu.fi/kokoelmat/arkistotyoasema..", "language": "fi", "element": "rights", "qualifier": "accessrights", "schema": "dc"}, {"key": "dc.type.okm", "value": "G2", "language": null, "element": "type", "qualifier": "okm", "schema": "dc"}]
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