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[{"key": "dc.contributor.advisor", "value": "Valokivi, Heli", "language": "", "element": "contributor", "qualifier": "advisor", "schema": "dc"}, {"key": "dc.contributor.author", "value": "Kivikangas, Anu", "language": "", "element": "contributor", "qualifier": "author", "schema": "dc"}, {"key": "dc.date.accessioned", "value": "2021-06-11T09:07:30Z", "language": null, "element": "date", "qualifier": "accessioned", "schema": "dc"}, {"key": "dc.date.available", "value": "2021-06-11T09:07:30Z", "language": null, "element": "date", "qualifier": "available", "schema": "dc"}, {"key": "dc.date.issued", "value": "2021", "language": "", "element": "date", "qualifier": "issued", "schema": "dc"}, {"key": "dc.identifier.uri", "value": "https://jyx.jyu.fi/handle/123456789/76438", "language": null, "element": "identifier", "qualifier": "uri", "schema": "dc"}, {"key": "dc.description.abstract", "value": "Tutkimukseni tavoitteena on tarkastella, miten neuropsykiatrisen diagnoosin saanut lapsi ja h\u00e4nen perheens\u00e4 ovat kokeneet osallisuutensa toteutumisen lastensuojelun ja terveydenhuollon verkostoissa. Neuropsykiatristen oireiden kirjon ollessa laaja, olen keskittynyt tutkimuksessani perheisiin, joiden lapsella on diagnosoitu ADHD\u2013, ADD\u2013 tai autisminkirjon h\u00e4iri\u00f6. Erilaiset neuropsykiatriset oireyhtym\u00e4t voivat aiheuttaa huomattavia haasteita mm. omantoiminnan ohjauksessa, keskittymisess\u00e4 sek\u00e4 sosiaalisissa suhteissa toimimisessa. Avun oikea\u2013aikainen saaminen on t\u00e4rke\u00e4\u00e4. Tutkimusaihetta l\u00e4hestyn Sherry R. Arnsteinin ja Roger Hartin osallisuuden tikapuumallien kautta. \n\nTutkimuksen aineiston olen ker\u00e4nnyt Facebookin Pro Nepsy nuoret ja lapset\u2013ryhm\u00e4ss\u00e4 sek\u00e4 Autisminkirjolaisten vanhemmat\u2013ryhm\u00e4ss\u00e4. Tutkimukseni on kvalitatiivinen ja aineiston analyysiss\u00e4 on k\u00e4ytetty sis\u00e4ll\u00f6nanalyysimenetelm\u00e4\u00e4. Vastaukset ker\u00e4sin anonyymeina sek\u00e4 ilman tunnistetietoja hy\u00f6dynt\u00e4en webropol\u2013alustaa. Keskityin tutkimuksessani perheiden omiin kokemuksiin siit\u00e4, miten paljon heit\u00e4 on kuultu lastensuojelussa ja terveydenhuollossa sek\u00e4 millaisena he ovat kokeneet osallisuutensa toteutumisen. Lis\u00e4ksi olen syventynyt pohtimaan perheiden kokemuksia diagnoosin merkityksest\u00e4 perheen el\u00e4m\u00e4\u00e4n sek\u00e4 my\u00f6s sit\u00e4, millaista apua he ovat saaneet lastensuojelusta ja terveydenhuollosta ja millaisesta avusta he olisivat kokeneet hy\u00f6tyv\u00e4ns\u00e4. \n\nTutkimuksen perusteella voidaan sanoa, ett\u00e4 perheiden n\u00e4k\u00f6kulmasta osallisuuden toteutuminen j\u00e4i valtaosassa tutkimusjoukkoa puutteelliseksi joko lastensuojelun tai terveydenhuollon osalta. Osassa vastauksia nousi kokemuksia, joissa osallisuutta ei ollut tunnistettavissa lainkaan tai se j\u00e4i hyvin v\u00e4h\u00e4iseksi.", "language": "fi", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Submitted by Paivi Vuorio (paelvuor@jyu.fi) on 2021-06-11T09:07:30Z\nNo. of bitstreams: 0", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Made available in DSpace on 2021-06-11T09:07:30Z (GMT). No. of bitstreams: 0\n Previous issue date: 2021", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.format.extent", "value": "74", "language": "", "element": "format", "qualifier": "extent", "schema": "dc"}, {"key": "dc.format.mimetype", "value": "application/pdf", "language": null, "element": "format", "qualifier": "mimetype", "schema": "dc"}, {"key": "dc.language.iso", "value": "fin", "language": null, "element": "language", "qualifier": "iso", "schema": "dc"}, {"key": "dc.rights", "value": "In Copyright", "language": "en", "element": "rights", "qualifier": null, "schema": "dc"}, {"key": "dc.subject.other", "value": "neuropsykiatriset oireyhtym\u00e4t", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.title", "value": "\"Se vaatii yliluonnollista vanhemmuutta\" : Nepsy-perheiden kokema osallisuus lastensuojelun ja terveydenhuollon verkostoissa", "language": "", "element": "title", "qualifier": null, "schema": "dc"}, {"key": "dc.type", "value": "master thesis", "language": null, "element": "type", "qualifier": null, "schema": "dc"}, {"key": "dc.identifier.urn", "value": "URN:NBN:fi:jyu-202106113645", "language": "", "element": "identifier", "qualifier": "urn", "schema": "dc"}, {"key": "dc.type.ontasot", "value": "Pro gradu -tutkielma", "language": "fi", "element": "type", "qualifier": "ontasot", "schema": "dc"}, {"key": "dc.type.ontasot", "value": "Master\u2019s thesis", "language": "en", "element": "type", "qualifier": "ontasot", "schema": "dc"}, {"key": "dc.contributor.faculty", "value": "Humanistis-yhteiskuntatieteellinen tiedekunta", "language": "fi", "element": "contributor", "qualifier": "faculty", "schema": "dc"}, {"key": "dc.contributor.faculty", "value": "Faculty of Humanities and Social Sciences", "language": "en", "element": "contributor", "qualifier": "faculty", "schema": "dc"}, {"key": "dc.contributor.department", "value": "Yhteiskuntatieteiden ja filosofian laitos", "language": "fi", "element": "contributor", "qualifier": "department", "schema": "dc"}, {"key": "dc.contributor.department", "value": "Department of Social Sciences and Philosophy", "language": "en", "element": "contributor", "qualifier": "department", "schema": "dc"}, {"key": "dc.contributor.organization", "value": "Jyv\u00e4skyl\u00e4n yliopisto", "language": "fi", "element": "contributor", "qualifier": "organization", "schema": "dc"}, {"key": "dc.contributor.organization", "value": "University of Jyv\u00e4skyl\u00e4", "language": "en", "element": "contributor", "qualifier": "organization", "schema": "dc"}, {"key": "dc.subject.discipline", "value": "Sosiaality\u00f6", "language": "fi", "element": "subject", "qualifier": "discipline", "schema": "dc"}, {"key": "dc.subject.discipline", "value": "Social Work", "language": "en", "element": "subject", "qualifier": "discipline", "schema": "dc"}, {"key": "yvv.contractresearch.funding", "value": "0", "language": "", "element": "contractresearch", "qualifier": "funding", "schema": "yvv"}, {"key": "dc.type.coar", "value": "http://purl.org/coar/resource_type/c_bdcc", "language": null, "element": "type", "qualifier": "coar", "schema": "dc"}, {"key": "dc.rights.accesslevel", "value": "openAccess", "language": null, "element": "rights", "qualifier": "accesslevel", "schema": "dc"}, {"key": "dc.type.publication", "value": "masterThesis", "language": null, "element": "type", "qualifier": "publication", "schema": "dc"}, {"key": "dc.subject.oppiainekoodi", "value": "210", "language": "", "element": "subject", "qualifier": "oppiainekoodi", "schema": "dc"}, {"key": "dc.subject.yso", "value": "terveydenhuolto", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "osallisuus", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "lastensuojelu", "language": null, "element": "subject", "qualifier": "yso", 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