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[{"key": "dc.contributor.advisor", "value": "Ranta-Tyrkk\u00f6, Satu", "language": "", "element": "contributor", "qualifier": "advisor", "schema": "dc"}, {"key": "dc.contributor.author", "value": "Ekebom, Hanna", "language": "", "element": "contributor", "qualifier": "author", "schema": "dc"}, {"key": "dc.date.accessioned", "value": "2020-06-29T06:22:27Z", "language": null, "element": "date", "qualifier": "accessioned", "schema": "dc"}, {"key": "dc.date.available", "value": "2020-06-29T06:22:27Z", "language": null, "element": "date", "qualifier": "available", "schema": "dc"}, {"key": "dc.date.issued", "value": "2020", "language": "", "element": "date", "qualifier": "issued", "schema": "dc"}, {"key": "dc.identifier.uri", "value": "https://jyx.jyu.fi/handle/123456789/70953", "language": null, "element": "identifier", "qualifier": "uri", "schema": "dc"}, {"key": "dc.description.abstract", "value": "T\u00e4m\u00e4n tutkimuksen tarkoituksena on perehty\u00e4 neurologisesti oireilevien eli nepsy-lasten erityistarpeisiin, kartoittaa millaista on ollut sosiaality\u00f6n tarjoama tuki ja mit\u00e4 voitaisiin tehd\u00e4 viel\u00e4 paremmin. L\u00e4hestyn aihetta vanhempien n\u00e4k\u00f6kulmasta. Tavoitteena on parantaa sosiaality\u00f6ntekij\u00e4n valmiuksia vastata paremmin nepsy-lapsiperheiden tarpeisiin. Empiirinen tutkimusaineisto muodostui lomaketutkimuksella ker\u00e4tyst\u00e4 tiedosta. Tutkimuksen kohdejoukon muodostivat verkossa Facebookin Pro nepsy nuoret ja lapset vertaistuellisen ryhm\u00e4n vanhemmat. Kyselyyn vastasi 49 vastaajaa. Vastaajien perheiss\u00e4 on yhteens\u00e4 67 0-18 vuotiasta nepsy-lasta tai nuorta, jolla ep\u00e4ill\u00e4\u00e4n tai on diagnosoitu jonkin asteinen neuropsykiatrinen h\u00e4iri\u00f6. Aineisto kuvailee 67 lapsen erityistarpeita ja heid\u00e4n k\u00e4ytt\u00e4mi\u00e4\u00e4n palveluja. Lis\u00e4ksi esille tulee millaisesta tuesta tai tukitoimista on ollut perheille hy\u00f6ty\u00e4, ja vanhempien kokemuksia niist\u00e4. Selvitin my\u00f6s millaista tukea perheet kaipaavat lis\u00e4\u00e4. \nTutkimuksen pohjalta esit\u00e4n nepsy-lapsiperheiden kanssa teht\u00e4v\u00e4n sosiaality\u00f6n tueksi tukipyramidi-mallin. Malli kuvailee lyhyesti perheen haasteita, sit\u00e4 mink\u00e4 perheet ovat kokeneet tuovan tukea, tai mit\u00e4 he viel\u00e4 toivoisivat lis\u00e4\u00e4. Malli on itse rakentamani ja perustuu aineistossa esiin tulleisiin asioihin. Se mahdollistaa lyhyell\u00e4kin ajalla aihepiiriin perehtymisen ja sit\u00e4 voidaan k\u00e4ytt\u00e4\u00e4 ideapaperina suunniteltaessa nepsy-perheen tukipalveluja yhdess\u00e4 perheen ja moniammatillisen tiimin kanssa. Toivon tukipyramidi-mallin auttavan my\u00f6s vanhempia saamaan uusia vertaistuellisia ajatuksia, esimerkiksi siit\u00e4, voisiko joku toisia perheit\u00e4 auttanut tukimuoto auttaa my\u00f6s heid\u00e4n perhett\u00e4ns\u00e4.", "language": "fi", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.abstract", "value": "The purpose of this study is to gain understanding of the special needs of children with neurological symptoms, to explore what kind of support provided has been provided by social word, and to provide suggestions on what could be done even better. I approach the subject from a parental perspective. The aim is to improve the ability of the social worker to better meet the needs of families having children with neuropsychiatric symptoms, nepsy-children for short. The empirical research data consisted of date collected through a semistructured survey form. The target group of the study consisted of online participants in a Facebook peer group for parents of nepsy youth and children. 49 respondents responded to the survey. There was a total of 67 nepsy children or adolescents aged 0-18 years with suspected or diagnosed neuropsychiatric disorder in the respondents\u2019 families. The research data describes the special needs and services used by 67 children. In addition, the study discovers what kind of support measures have benefited families and the parents` experiences of them. I also found out what kind of support families need more. \nBased on the analysis, I present a support pyramid model for the development of social work services. The model concisely describes the challenges for the family, what support services the parents have experienced as useful, or what they would like more. I built the model myself and it is based on the things that was discovered in the data. It enables familiarization with the topic even in a short time and can be used as an idea paper when planning nepsy family support services with the family and the professional support team. I hope the support pyramid model will also help parents get new ideas from peers, if some form of support has helped other families, whether it could help their family too.", "language": "en", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Submitted by Miia Hakanen (mihakane@jyu.fi) on 2020-06-29T06:22:27Z\nNo. of bitstreams: 0", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Made available in DSpace on 2020-06-29T06:22:27Z (GMT). No. of bitstreams: 0\n Previous issue date: 2020", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.format.extent", "value": "94", "language": "", "element": "format", "qualifier": "extent", "schema": "dc"}, {"key": "dc.format.mimetype", "value": "application/pdf", "language": null, "element": "format", "qualifier": "mimetype", "schema": "dc"}, {"key": "dc.language.iso", "value": "fin", "language": null, "element": "language", "qualifier": "iso", "schema": "dc"}, {"key": "dc.rights", "value": "In Copyright", "language": "en", "element": "rights", "qualifier": null, "schema": "dc"}, {"key": "dc.subject.other", "value": "neuropsykiatriset oireet", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.title", "value": "Lapsiperhepalvelut nepsy-lapsiperheen vanhemman kokemana", "language": "", "element": "title", "qualifier": null, "schema": "dc"}, {"key": "dc.type", "value": "master thesis", "language": null, "element": "type", "qualifier": null, "schema": "dc"}, {"key": "dc.identifier.urn", "value": "URN:NBN:fi:jyu-202006295139", "language": "", "element": "identifier", "qualifier": "urn", "schema": "dc"}, {"key": "dc.type.ontasot", "value": "Pro gradu -tutkielma", "language": "fi", "element": "type", "qualifier": "ontasot", "schema": "dc"}, {"key": "dc.type.ontasot", "value": "Master\u2019s thesis", "language": "en", "element": "type", "qualifier": "ontasot", "schema": "dc"}, {"key": "dc.contributor.faculty", "value": "Humanistis-yhteiskuntatieteellinen tiedekunta", "language": "fi", "element": "contributor", "qualifier": "faculty", "schema": "dc"}, {"key": "dc.contributor.faculty", "value": "Faculty of Humanities and Social Sciences", "language": "en", "element": "contributor", "qualifier": "faculty", "schema": "dc"}, {"key": "dc.contributor.department", "value": "Yhteiskuntatieteiden ja filosofian laitos", "language": "fi", "element": "contributor", "qualifier": "department", "schema": "dc"}, {"key": "dc.contributor.department", "value": "Department of Social Sciences and Philosophy", "language": "en", "element": "contributor", "qualifier": "department", "schema": "dc"}, {"key": "dc.contributor.organization", "value": "Jyv\u00e4skyl\u00e4n yliopisto", "language": "fi", "element": "contributor", "qualifier": "organization", "schema": "dc"}, {"key": "dc.contributor.organization", "value": "University of Jyv\u00e4skyl\u00e4", "language": "en", "element": "contributor", "qualifier": "organization", "schema": "dc"}, {"key": "dc.subject.discipline", "value": "Sosiaality\u00f6", "language": "fi", "element": "subject", "qualifier": "discipline", "schema": "dc"}, {"key": "dc.subject.discipline", "value": "Social Work", "language": "en", "element": "subject", "qualifier": "discipline", "schema": "dc"}, {"key": "yvv.contractresearch.funding", "value": "0", "language": "", "element": "contractresearch", "qualifier": "funding", "schema": "yvv"}, {"key": "dc.type.coar", 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"element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "lapsiperheet", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "lastensuojelu", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "tukeminen", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "sosiaality\u00f6", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "ADHD", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "vanhemmat", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "Aspergerin oireyhtym\u00e4", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "erityinen tuki", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.format.content", "value": "fulltext", "language": null, "element": "format", "qualifier": "content", "schema": "dc"}, {"key": "dc.rights.url", "value": "https://rightsstatements.org/page/InC/1.0/", "language": null, "element": "rights", "qualifier": "url", "schema": "dc"}, {"key": "dc.type.okm", "value": "G2", "language": null, "element": "type", "qualifier": "okm", "schema": "dc"}]
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