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[{"key": "dc.contributor.advisor", "value": "Zhang, Yixin", "language": "", "element": "contributor", "qualifier": "advisor", "schema": "dc"}, {"key": "dc.contributor.advisor", "value": "Koskelainen, Tiina", "language": "", "element": "contributor", "qualifier": "advisor", "schema": "dc"}, {"key": "dc.contributor.advisor", "value": "Kypp\u00f6, Jorma", "language": "", "element": "contributor", "qualifier": "advisor", "schema": "dc"}, {"key": "dc.contributor.author", "value": "Nousiainen, Suvi", "language": "", "element": "contributor", "qualifier": "author", "schema": "dc"}, {"key": "dc.date.accessioned", "value": "2020-06-15T07:44:53Z", "language": null, "element": "date", "qualifier": "accessioned", "schema": "dc"}, {"key": "dc.date.available", "value": "2020-06-15T07:44:53Z", "language": null, "element": "date", "qualifier": "available", "schema": "dc"}, {"key": "dc.date.issued", "value": "2020", "language": "", "element": "date", "qualifier": "issued", "schema": "dc"}, {"key": "dc.identifier.uri", "value": "https://jyx.jyu.fi/handle/123456789/69931", "language": null, "element": "identifier", "qualifier": "uri", "schema": "dc"}, {"key": "dc.description.abstract", "value": "T\u00e4ss\u00e4 tutkielmassa tutustuttiin kroonisesti sairaiden vertaistukiyhteis\u00f6ihin verkossa ja siihen, kuinka potilaat k\u00e4ytt\u00e4v\u00e4t niit\u00e4 ja miten ne vaikuttavat heid\u00e4n hyvinvointiinsa. Lis\u00e4ksi tutkittiin, onko verkon vertaistukiyhteis\u00f6jen k\u00e4ytt\u00f6 ja vaikutukset samankaltaisia suomalaisten narkolepsiapotilaiden joukossa.\nKrooniset sairaudet hankaloittavat el\u00e4m\u00e4\u00e4 monin tavoin. Vertaistuki auttaa potilaita ymm\u00e4rt\u00e4m\u00e4\u00e4n sairautta paremmin ja tuntemaan itsens\u00e4 normaaliksi sairaudesta huolimatta. Kroonisesti sairaiden m\u00e4\u00e4r\u00e4 on ollut kasvussa ymp\u00e4ri maailman, joten my\u00f6s vertaistuen tarve kasvaa.\nInternet tarjoaa uudenlaisia tapoja toteuttaa vertaistukea. Nettiyhteis\u00f6t ja sosiaalinen media mahdollistavat potilaiden yhteydenpidon riippumatta heid\u00e4n fyysisist\u00e4 sijainneistaan.\nAihetta tutkittiin kirjallisuuskatsauksen ja haastatteluiden avulla. Aluksi tutustuttiin aiempiin tutkimuksiin kroonisesti sairaiden verkossa tapahtuvasta vertaistuesta ja terveysviestinn\u00e4st\u00e4. Sen j\u00e4lkeen suomalaisille narkolepsiapotilaille j\u00e4rjestettiin puolistrukturoituja haastatteluja. Haastattelut analysoitiin teemoittelemalla.\nSuomalaiset narkolepsiapotilaat ja muut kroonisesti sairaat k\u00e4ytt\u00e4v\u00e4t verkon vertaistukiyhteis\u00f6j\u00e4 p\u00e4\u00e4asiassa keskustellakseen kokemuksistaan ja jakaakseen tietoa taudista.\nVerkossa tapahtuvalla vertaistuella on monia hy\u00f6tyj\u00e4: se luo tunteen yhteydest\u00e4 sek\u00e4 auttaa potilaita tuntemaan itsens\u00e4 v\u00e4hemm\u00e4n eristyneiksi ja l\u00f6yt\u00e4m\u00e4\u00e4n uutta tietoa. Vertaisten kanssa juttelu auttaa hyv\u00e4ksym\u00e4\u00e4n taudin normaalina osana el\u00e4m\u00e4\u00e4. Suomalaiset narkolepsiapotilaat olivat huomanneet samanlaisia hy\u00f6tyj\u00e4.\nVerkossa tapahtuva vertaistuki saattaa asettaa potilaalle liian korkeita odotuksia tai saada h\u00e4net ottavaan muiden negatiiviset kokemukset henkil\u00f6kohtaisesti. Jotkut saattavat luottaa vertaisiinsa liikaa ja noudattaa heilt\u00e4 saamiaan huonoja neuvoja. Suomalaiset narkolepsiapotilaat eiv\u00e4t olleet huomanneet t\u00e4m\u00e4n kaltaisia huonoja vaikutuksia.", "language": "fi", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.abstract", "value": "This master\u2019s thesis explored online peer-to-peer communities for chronically ill, how patients use them and how they affect their well-being. In addition to that, it was researched if the usage and effects are similar amongst Finnish narco-lepsy patients.\nChronic diseases complicate life in many ways. Peer-to-peer support helps patients to understand their disease better and to feel more normal despite the disease. The amount of chronically ill patients has been increasing globally which means that there is an increasing need for peer-to-peer support.\nThe internet offers new ways to conduct peer-to-peer support. Online communities and social media allow patients to interact with each other re-gardless of their physical location.\nThe topic was researched with a literature review and interviews. At first, earlier studies about chronically ill and online peer-to-peer support or online health-communication were explored. After that, semi-structured interviews were conducted with Finnish narcolepsy patients. Interviews were analyzed with thematic analysis.\nFinnish narcolepsy patients as well as other chronically ill use online peer-to-peer support communities mainly to discuss their own experiences and share information about their disease.\nOnline peer-to-peer support has many benefits: it gives a sense of connec-tion, and helps to feel less isolated and to find new information. Chatting with peers helps to accept the disease as a normal part of one\u2019s life. Finnish narco-lepsy patients had experienced similar benefits.\nOnline peer-to-peer support might set up too high expectations or make one take his peers\u2019 negative experiences too personally. Some patients might trust their peers too much and take poor advice from them. Finnish narcolepsy patients had not experienced these negative effects.", "language": "en", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Submitted by Miia Hakanen (mihakane@jyu.fi) on 2020-06-15T07:44:53Z\nNo. of bitstreams: 0", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Made available in DSpace on 2020-06-15T07:44:53Z (GMT). No. of bitstreams: 0\n Previous issue date: 2020", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.format.extent", "value": "53", "language": "", "element": "format", "qualifier": "extent", "schema": "dc"}, {"key": "dc.format.mimetype", "value": "application/pdf", "language": null, "element": "format", "qualifier": "mimetype", "schema": "dc"}, {"key": "dc.language.iso", "value": "eng", "language": null, "element": "language", "qualifier": "iso", "schema": "dc"}, {"key": "dc.rights", "value": "In Copyright", "language": "en", "element": "rights", "qualifier": null, "schema": "dc"}, {"key": "dc.title", "value": "Chronically Ill and Online Peer-to-Peer Support", "language": "", "element": "title", "qualifier": null, "schema": "dc"}, {"key": "dc.type", "value": "master thesis", "language": null, "element": "type", "qualifier": null, "schema": "dc"}, {"key": "dc.identifier.urn", "value": "URN:NBN:fi:jyu-202006154175", "language": "", "element": "identifier", "qualifier": "urn", "schema": "dc"}, {"key": "dc.type.ontasot", "value": "Pro gradu -tutkielma", "language": "fi", "element": "type", "qualifier": "ontasot", "schema": "dc"}, {"key": "dc.type.ontasot", "value": "Master\u2019s thesis", "language": "en", "element": "type", "qualifier": "ontasot", "schema": "dc"}, {"key": "dc.contributor.faculty", "value": "Informaatioteknologian tiedekunta", "language": "fi", "element": "contributor", "qualifier": "faculty", "schema": "dc"}, {"key": "dc.contributor.faculty", "value": "Faculty of Information Technology", "language": "en", "element": "contributor", "qualifier": "faculty", "schema": "dc"}, {"key": "dc.contributor.department", "value": "Informaatioteknologia", "language": "fi", "element": "contributor", "qualifier": "department", "schema": "dc"}, {"key": "dc.contributor.department", "value": "Information Technology", "language": "en", "element": "contributor", "qualifier": "department", "schema": "dc"}, {"key": "dc.contributor.organization", "value": "Jyv\u00e4skyl\u00e4n yliopisto", "language": "fi", "element": "contributor", "qualifier": "organization", "schema": "dc"}, {"key": "dc.contributor.organization", "value": "University of Jyv\u00e4skyl\u00e4", "language": "en", "element": "contributor", "qualifier": "organization", "schema": "dc"}, {"key": "dc.subject.discipline", "value": "Tietoj\u00e4rjestelm\u00e4tiede", "language": "fi", "element": "subject", "qualifier": "discipline", "schema": "dc"}, {"key": "dc.subject.discipline", "value": "Information Systems Science", "language": "en", "element": "subject", "qualifier": "discipline", "schema": "dc"}, {"key": "yvv.contractresearch.funding", "value": "0", "language": "", "element": "contractresearch", "qualifier": "funding", "schema": "yvv"}, {"key": "dc.type.coar", "value": "http://purl.org/coar/resource_type/c_bdcc", "language": null, "element": "type", "qualifier": "coar", "schema": "dc"}, {"key": "dc.rights.accesslevel", "value": "openAccess", "language": null, "element": "rights", "qualifier": "accesslevel", "schema": "dc"}, {"key": "dc.type.publication", "value": "masterThesis", "language": null, "element": "type", "qualifier": "publication", "schema": "dc"}, {"key": "dc.subject.oppiainekoodi", "value": "601", "language": "", "element": "subject", "qualifier": "oppiainekoodi", "schema": "dc"}, {"key": "dc.subject.yso", "value": "kroonikot", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "sosiaalinen media", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "verkkoyhteis\u00f6t", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "vertaistuki", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "kokemukset", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "sosiaaliset verkostot", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "krooniset taudit", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "vuorovaikutus", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "Internet", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "chronics (patients)", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "social media", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "online communities", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "peer support", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "experiences (knowledge)", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "social networks", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "chronic diseases", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "interaction", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "Internet", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.format.content", "value": "fulltext", "language": null, "element": "format", "qualifier": "content", "schema": "dc"}, {"key": "dc.rights.url", "value": "https://rightsstatements.org/page/InC/1.0/", "language": null, "element": "rights", "qualifier": "url", 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