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[{"key": "dc.contributor.advisor", "value": "Sorkkila, Matilda", "language": "", "element": "contributor", "qualifier": "advisor", "schema": "dc"}, {"key": "dc.contributor.author", "value": "F\u00e5gel, Paula", "language": "", "element": "contributor", "qualifier": "author", "schema": "dc"}, {"key": "dc.contributor.author", "value": "Kukkonen, Sonja", "language": "", "element": "contributor", "qualifier": "author", "schema": "dc"}, {"key": "dc.date.accessioned", "value": "2020-05-27T07:13:42Z", "language": null, "element": "date", "qualifier": "accessioned", "schema": "dc"}, {"key": "dc.date.available", "value": "2020-05-27T07:13:42Z", "language": null, "element": "date", "qualifier": "available", "schema": "dc"}, {"key": "dc.date.issued", "value": "2020", "language": "", "element": "date", "qualifier": "issued", "schema": "dc"}, {"key": "dc.identifier.uri", "value": "https://jyx.jyu.fi/handle/123456789/69254", "language": null, "element": "identifier", "qualifier": "uri", "schema": "dc"}, {"key": "dc.description.abstract", "value": "Vanhemmuuden uupumus on vakava oireyhtym\u00e4, joka on seurausta pitk\u00e4aikaisesta stressist\u00e4 vanhemmuudessa. Uupuneille vanhemmille tarjottu tuki onkin ensiarvoisen t\u00e4rke\u00e4\u00e4, \nsill\u00e4 vanhemman hyvinvointi heijastuu koko perheen hyvinvointiin. Erityislapsen vanhemmuus on yksi riskitekij\u00e4 vanhemmuuden uupumukselle, sill\u00e4 se tuo mukanaan erityisi\u00e4 kuormitustekij\u00f6it\u00e4 sek\u00e4 niiden my\u00f6t\u00e4 my\u00f6s kokemuksen poikkeuksellisen vanhemmuuden tarjoamisesta. Erityislasten vanhempien uupumustutkimus on ollut v\u00e4h\u00e4ist\u00e4 ja \nsiksi t\u00e4m\u00e4n tutkimuksen keski\u00f6ss\u00e4 ovat erityislasten vanhemmat ja heid\u00e4n kokemuksensa \ntuen tarpeesta. \nT\u00e4ss\u00e4 tutkimuksessa pyrittiin selvitt\u00e4m\u00e4\u00e4n, onko erityislasten vanhemmilla enemm\u00e4n vanhemmuuden uupumusta kuin muiden perheiden vanhemmilla ja n\u00e4ytt\u00e4ytyv\u00e4tk\u00f6 \nuupumuksen osa-alueet heid\u00e4n kohdallaan eri tavalla. Lis\u00e4ksi selvitettiin, millaista tukea \nerityislasten vanhemmat toivoisivat saavansa. Tutkielma toteutettiin osana Jyv\u00e4skyl\u00e4n \nyliopiston Vanhemmuuden voimavara- ja kuormitustekij\u00e4t (VoiKu) -hanketta, joka kuuluu kansainv\u00e4liseen International Investigation of Parental Burnout (IIPB) -tutkimukseen. \nVoiKu-tutkimukseen osallistui 1725 suomalaisvanhempaa, joista 24 % oli erityislapsen \nvanhempia. Kyselylomakkeella ker\u00e4tyn aineiston analysoinnissa hy\u00f6dynnettiin m\u00e4\u00e4r\u00e4llisen aineiston osalta monimuuttujaista varianssianalyysi\u00e4 ja laadullisen aineiston osalta \ntemaattista analyysi\u00e4. \nTutkimuksessa havaittiin, ett\u00e4 erityislasten vanhemmat uupuivat muita vanhempia \nenemm\u00e4n ja erityislapsen vanhemmuus selitti vanhemmuuden uupumusta erityisesti uupumusasteisen v\u00e4symyksen osalta. Lis\u00e4ksi l\u00f6ydettiin tarpeita ja toiveita siit\u00e4, millaista \ntukea erityislasten vanhemmat haluaisivat heille tarjottavan. Kaiken kaikkiaan erityislasten vanhemmille tarjottavan tuen tulisi tukea vanhemman hyvinvointia ja perustua heid\u00e4n \nyksil\u00f6lliseen kokemukseensa erityislapsen vanhemmuudestaan. T\u00e4m\u00e4 tutkimus tarjoaa \nikkunan erityislapsen vanhemmuuden kokemusmaailmaan lis\u00e4ten ymm\u00e4rryst\u00e4 erityislapsen vanhemmuuden uupumuksesta ja siten auttaa kehitt\u00e4m\u00e4\u00e4n heille tarjottavaa tukea.", "language": "fi", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.abstract", "value": "Parental burnout is a severe syndrome caused by chronic parental stress. The support offered to exhausted parents is crucial, because the wellbeing of a parent influences the \nwellbeing of the entire family. Having a child with special needs is a risk factor for parental burnout - it burdens the parenthood by requiring exceptional demands of parenting. \nBecause only few studies so far have investigated parents of children with special needs \nthere is a need for this kind of study. \nThe aim of this study was to compare whether parents of children with special needs \nexperience more parental burnout than other parents in terms of overall parental burnout, \non one hand, and its subscales (exhaustion in one's role as a parent, emotional distancing \nfrom one's children, being fed up to one's parental role, contrast to one's previous parental self), on the other. Furthermore, this study investigates what kind of support the parents of children with special needs would like to have. This study was conducted as a part \nof Vanhemmuuden voimavara- ja kuormitustekij\u00e4t (VoiKu) project at the University of \nJyv\u00e4skyl\u00e4. VoiKu is a part of the International Investigation of Parental Burnout (IIPB) \nstudy. The participants were 1725 Finnish parents (91 % mothers) who participated in the \nVoiKu survey, and 24 % of them were parents of children with special needs. The results \nwere analyzed by using quantitative (multivariate analysis of variance) and qualitative \n(thematic analysis) methods. \nThe study revealed that parents of children with special needs were more burned \nout as parents and experienced particularly light levels of emotional exhaustion compared \nto other parents. Additionally, the study indicated that the support that is offered to parents \nshould focus on improving parents\u2019 wellbeing and it should be based on the individual \nexperiences of each parent of a child with a special need. This study provides knowledge \nabout the parental burnout among parents of children with special needs and thus helps \ngenerate different paths of support.", "language": "en", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Submitted by Paivi Vuorio (paelvuor@jyu.fi) on 2020-05-27T07:13:42Z\nNo. of bitstreams: 0", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Made available in DSpace on 2020-05-27T07:13:42Z (GMT). No. of bitstreams: 0\n Previous issue date: 2020", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.format.extent", "value": "34", "language": "", "element": "format", "qualifier": "extent", "schema": "dc"}, {"key": "dc.format.mimetype", "value": "application/pdf", "language": null, "element": "format", "qualifier": "mimetype", "schema": "dc"}, {"key": "dc.language.iso", "value": "fin", "language": null, "element": "language", "qualifier": "iso", "schema": "dc"}, {"key": "dc.rights", "value": "In Copyright", "language": "en", "element": "rights", "qualifier": null, "schema": "dc"}, {"key": "dc.subject.other", "value": "erityislapsen vanhemmuus", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.subject.other", "value": "vanhemmuuden tuki", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.title", "value": "Erityislasten vanhempien uupumus ja tuen tarve", "language": "", "element": "title", "qualifier": null, "schema": "dc"}, {"key": "dc.type", "value": "master thesis", "language": null, "element": "type", "qualifier": null, "schema": "dc"}, {"key": "dc.identifier.urn", "value": "URN:NBN:fi:jyu-202005273506", "language": "", "element": "identifier", "qualifier": "urn", "schema": "dc"}, {"key": "dc.type.ontasot", "value": "Pro gradu -tutkielma", "language": "fi", "element": "type", "qualifier": "ontasot", "schema": "dc"}, {"key": "dc.type.ontasot", "value": "Master\u2019s thesis", "language": "en", "element": "type", "qualifier": "ontasot", "schema": "dc"}, {"key": "dc.contributor.faculty", "value": "Kasvatustieteiden ja psykologian tiedekunta", "language": "fi", "element": "contributor", "qualifier": "faculty", "schema": "dc"}, {"key": "dc.contributor.faculty", "value": "Faculty of Education and Psychology", "language": "en", "element": "contributor", "qualifier": "faculty", "schema": "dc"}, {"key": "dc.contributor.department", "value": "Psykologian laitos", "language": "fi", "element": "contributor", "qualifier": "department", "schema": "dc"}, {"key": "dc.contributor.department", "value": "Department of Psychology", "language": "en", "element": "contributor", "qualifier": "department", "schema": "dc"}, {"key": "dc.contributor.organization", "value": "Jyv\u00e4skyl\u00e4n yliopisto", "language": "fi", "element": "contributor", "qualifier": "organization", "schema": "dc"}, {"key": "dc.contributor.organization", "value": "University of Jyv\u00e4skyl\u00e4", "language": "en", "element": "contributor", "qualifier": "organization", "schema": "dc"}, {"key": "dc.subject.discipline", "value": "Psykologia", "language": "fi", "element": "subject", "qualifier": "discipline", "schema": "dc"}, {"key": "dc.subject.discipline", "value": "Psychology", "language": "en", "element": "subject", "qualifier": "discipline", "schema": "dc"}, {"key": "yvv.contractresearch.funding", "value": "0", "language": "", "element": "contractresearch", "qualifier": "funding", "schema": "yvv"}, {"key": "dc.type.coar", "value": "http://purl.org/coar/resource_type/c_bdcc", "language": null, "element": "type", "qualifier": "coar", "schema": "dc"}, {"key": "dc.rights.accesslevel", "value": "openAccess", "language": null, "element": "rights", "qualifier": "accesslevel", "schema": "dc"}, {"key": "dc.type.publication", "value": "masterThesis", "language": null, "element": "type", "qualifier": "publication", "schema": "dc"}, {"key": "dc.subject.oppiainekoodi", "value": "202", "language": "", "element": "subject", "qualifier": "oppiainekoodi", "schema": "dc"}, {"key": "dc.subject.yso", "value": "vanhemmuus", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "vanhemmat", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "uupumus", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "erityislapset", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.format.content", "value": "fulltext", "language": null, "element": "format", "qualifier": "content", "schema": "dc"}, {"key": "dc.rights.url", "value": "https://rightsstatements.org/page/InC/1.0/", "language": null, "element": "rights", "qualifier": "url", "schema": "dc"}, {"key": "dc.type.okm", "value": "G2", "language": null, "element": "type", "qualifier": "okm", "schema": "dc"}]
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