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[{"key": "dc.contributor.advisor", "value": "Poskiparta, Marita", "language": "", "element": "contributor", "qualifier": "advisor", "schema": "dc"}, {"key": "dc.contributor.author", "value": "Kalliokoski, Piia", "language": "", "element": "contributor", "qualifier": "author", "schema": "dc"}, {"key": "dc.date.accessioned", "value": "2019-03-18T09:38:43Z", "language": null, "element": "date", "qualifier": "accessioned", "schema": "dc"}, {"key": "dc.date.available", "value": "2019-03-18T09:38:43Z", "language": null, "element": "date", "qualifier": "available", "schema": "dc"}, {"key": "dc.date.issued", "value": "2019", "language": "", "element": "date", "qualifier": "issued", "schema": "dc"}, {"key": "dc.identifier.uri", "value": "https://jyx.jyu.fi/handle/123456789/63166", "language": null, "element": "identifier", "qualifier": "uri", "schema": "dc"}, {"key": "dc.description.abstract", "value": "Tulehduksellisten suolistosairauksien m\u00e4\u00e4r\u00e4 kasvaa jatkuvasti. Sairauden seurannalla on keskeinen rooli hoidossa. Seurantaa kehitet\u00e4\u00e4n systemaattisemmaksi siten, ett\u00e4 potilaan rooli korostuu sairauden omatoimisessa seurannassa. Systemaattisen ja omatoimisen sairauden seurannan on tarkoitus helpottaa potilaan arkea ja mahdollistaa terveydenhuollon resurssien keskitt\u00e4misen potilaisiin, joiden oireet ovat vaikeita. Potilaiden n\u00e4kemys sairauden omatoimisesta seuraamisesta on t\u00e4rke\u00e4 erityisesti silloin, kun sairauden seurantaa kehitet\u00e4\u00e4n suuntaan, jossa potilaan rooli on aktiivinen. \nT\u00e4ss\u00e4 pro gradu -tutkimuksessa selvitettiin kuinka tulehduksellista suolistosairautta sairastavat henkil\u00f6t kirjaavat ja seuraavat oireitaan, sek\u00e4 sit\u00e4 kuinka he suhtautuvat suunnitteilla olevaan digitaaliseen omaseurantaj\u00e4rjestelm\u00e4\u00e4n. Tutkimus toteutettiin Crohn ja Colitis yhdistyksen j\u00e4senille kyselytutkimuksena. \nTutkimusaineisto koostui 1430 vastauksesta. Aineisto analysoitiin frekvenssianalyysin, ristiintaulukoinnin ja logistisen regressioanalyysin avulla, ja tilastollinen merkitsevyys testattiin X\u00b2 -riippuvuustestill\u00e4. Tulokset osoittivat, ett\u00e4 suurin osa kyselyyn vastanneista ei kirjannut sairautensa oireita itsen\u00e4isesti. Useimmat suhtautuivat kuitenkin my\u00f6nteisesti suunnitteilla olevaan omaseurantaj\u00e4rjestelm\u00e4\u00e4n, jossa oireiden kirjaus on systemaattista. J\u00e4rjestelm\u00e4n t\u00e4rkeimp\u00e4n\u00e4 ominaisuutena pidettiin tietojen siirtymist\u00e4 automaattisesti terveydenhuoltoon. Osaa huolestutti se, ett\u00e4 digitaalisen omaseurantaj\u00e4rjestelm\u00e4n my\u00f6t\u00e4 perinteinen yhteydenotto hoitotiimiin voisi hankaloitua.\nPotilaiden omatoimiseen sairauden seurantaan perustuvalle j\u00e4rjestelm\u00e4lle n\u00e4ytt\u00e4isi olevan tarvetta, ja sen k\u00e4ytt\u00f6\u00f6n halukkuutta potilaiden keskuudessa. Systemaattisen seurannan merkityst\u00e4 potilaille tulisi korostaa, jotta he motivoituvat kirjaamaan sairautensa oireita s\u00e4\u00e4nn\u00f6llisesti. Sairauden seurantatietojen v\u00e4litt\u00e4minen terveydenhuoltoon on t\u00e4rke\u00e4\u00e4 potilaille, joten omaseurantaj\u00e4rjestelm\u00e4n ja terveydenhuollon hoitoyksik\u00f6n v\u00e4lill\u00e4 tulee olla yhteys. Potilaiden mahdollinen huoli siit\u00e4, ettei hoitotiimiin saisi yhteytt\u00e4 omaseurantaj\u00e4rjestelm\u00e4n k\u00e4yt\u00f6n my\u00f6t\u00e4, tulee huomioida kerrottaessa j\u00e4rjestelm\u00e4st\u00e4 potilaille. Saatujen tulosten perusteella omaseurantaj\u00e4rjestelm\u00e4\u00e4 voidaan rakentaa potilaiden n\u00e4k\u00f6kulma huomioiden. Tutkimuksen tulokset antavat aihetta lis\u00e4tutkimukseen potilaiden n\u00e4kemyksest\u00e4 my\u00f6s potilasj\u00e4rjest\u00f6n ulkopuolella.", "language": "fi", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.abstract", "value": "The number of inflammatory bowel diseases is constantly increasing. Monitoring the disease plays the key role in the treatment. The aim is to develop the monitoring system more systematically so that the role of the patient is emphasized in the self-monitoring of the disease and the transmission of information to health care. This facilitates both the daily life of the patient and enables the resources of health care to focus in patients whose symptoms are difficult. Patients vision of self-monitoring is particularly important when monitoring will be developed to the direction where role of the patient is active.\nThis master thesis investigated how individuals with inflammatory bowel disease record and follow their symptoms. Second, their attitude to the planned digital self-monitoring system was studied. The study was conducted as a questionnaire for Crohn's and Colitis association members. In addition, the questionnaire could also be answered at the association's Facebook and home page, by people not belonging to the association.\nThe research material consisted of 1430 responses. The material was analyzed by frequency analysis, cross table and logistic regression analysis, and the statistical significance was tested by the X\u00b2 dependency test. The results showed that most respondents did not record the symptoms of their illness independently. However, for the most part responded positively the planned self-monitoring system, where the symptom registration is systematic. According to the respondents, the most important feature of the system was the automatic transfer of data to healthcare. Some respondents were concerned that the use of digital self-monitoring system could cause difficulties to get contact with the healthcare team by traditional way.\nThere seems to be a need and willingness among patients for use the self-monitoring system. The importance of systematic monitoring for patients should be emphasized in order to motivate them to record the symptoms of their illness regularly. Transmission of disease monitoring information to health care is important for patients, so the self-monitoring system should have feature of data mediation which should be communicated clearly to patients. Patients\u2019 possible concern over the lack of contact with the care team when using the self-monitoring system should be considered when recommending use of the system to the patients. Based on the results obtained, the self-monitoring system can be built with the perspective of the patients. This study gives a reason for additional study of patients view outside of the patient organization.", "language": "en", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Submitted by Paivi Vuorio (paelvuor@jyu.fi) on 2019-03-18T09:38:43Z\nNo. of bitstreams: 0", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Made available in DSpace on 2019-03-18T09:38:43Z (GMT). No. of bitstreams: 0\n Previous issue date: 2019", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.format.extent", "value": "70", "language": "", "element": "format", "qualifier": "extent", "schema": "dc"}, {"key": "dc.format.mimetype", "value": "application/pdf", "language": null, "element": "format", "qualifier": "mimetype", "schema": "dc"}, {"key": "dc.language.iso", "value": "fin", "language": null, "element": "language", "qualifier": "iso", "schema": "dc"}, {"key": "dc.rights", "value": "In Copyright", "language": "en", "element": "rights", "qualifier": null, "schema": "dc"}, {"key": "dc.subject.other", "value": "tulehdukselliset suolistosairaudet", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.subject.other", "value": "digitaalinen terveydenhuolto", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.title", "value": "Tulehduksellista suolistosairautta sairastavien suhtautuminen sairauden digitaaliseen omaseurantaj\u00e4rjestelm\u00e4\u00e4n", "language": "", "element": "title", "qualifier": null, "schema": "dc"}, {"key": "dc.type", "value": "master thesis", "language": null, "element": "type", "qualifier": null, "schema": "dc"}, {"key": "dc.identifier.urn", "value": "URN:NBN:fi:jyu-201903181878", "language": "", "element": "identifier", "qualifier": "urn", "schema": "dc"}, {"key": "dc.type.ontasot", "value": "Pro gradu -tutkielma", "language": "fi", "element": "type", "qualifier": "ontasot", "schema": "dc"}, {"key": "dc.type.ontasot", "value": "Master\u2019s thesis", "language": "en", "element": "type", "qualifier": "ontasot", "schema": "dc"}, {"key": "dc.contributor.faculty", "value": "Liikuntatieteellinen tiedekunta", "language": "fi", "element": "contributor", "qualifier": "faculty", "schema": "dc"}, {"key": "dc.contributor.faculty", "value": "Faculty of Sport and Health Sciences", "language": "en", "element": "contributor", "qualifier": "faculty", "schema": "dc"}, {"key": "dc.contributor.department", "value": "Liikunta- ja terveystieteet", "language": "fi", "element": "contributor", "qualifier": "department", "schema": "dc"}, {"key": "dc.contributor.department", "value": "Sport and Health Sciences", "language": "en", "element": "contributor", "qualifier": "department", "schema": "dc"}, {"key": "dc.contributor.organization", "value": "Jyv\u00e4skyl\u00e4n yliopisto", "language": "fi", "element": "contributor", "qualifier": "organization", "schema": "dc"}, {"key": "dc.contributor.organization", "value": "University of Jyv\u00e4skyl\u00e4", "language": "en", "element": "contributor", "qualifier": "organization", "schema": "dc"}, {"key": "dc.subject.discipline", "value": "Terveyskasvatus", "language": "fi", "element": "subject", "qualifier": "discipline", "schema": "dc"}, {"key": "dc.subject.discipline", "value": "Health Education", "language": "en", "element": "subject", "qualifier": "discipline", "schema": "dc"}, {"key": "yvv.contractresearch.funding", "value": "0", "language": "", "element": "contractresearch", "qualifier": "funding", "schema": "yvv"}, {"key": "dc.type.coar", "value": "http://purl.org/coar/resource_type/c_bdcc", "language": null, "element": "type", "qualifier": "coar", "schema": "dc"}, {"key": "dc.rights.accesslevel", "value": "openAccess", "language": null, "element": "rights", "qualifier": "accesslevel", "schema": "dc"}, {"key": "dc.type.publication", "value": "masterThesis", "language": null, "element": "type", "qualifier": "publication", "schema": "dc"}, {"key": "dc.subject.oppiainekoodi", "value": "50411", "language": "", "element": "subject", "qualifier": "oppiainekoodi", "schema": "dc"}, {"key": "dc.subject.yso", "value": "itseohjautuvuus", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "Crohnin tauti", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "seuranta", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "koliitti", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "k\u00e4ytett\u00e4vyys", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.format.content", "value": "fulltext", "language": null, "element": "format", "qualifier": "content", "schema": "dc"}, {"key": "dc.rights.url", "value": "https://rightsstatements.org/page/InC/1.0/", "language": null, "element": "rights", "qualifier": "url", "schema": "dc"}, {"key": "dc.type.okm", "value": "G2", "language": null, "element": "type", "qualifier": "okm", "schema": "dc"}]
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