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[{"key": "dc.contributor.advisor", "value": "Tenhunen, Sirpa", "language": "", "element": "contributor", "qualifier": "advisor", "schema": "dc"}, {"key": "dc.contributor.author", "value": "Anttila, Kaisa Maria", "language": null, "element": "contributor", "qualifier": "author", "schema": "dc"}, {"key": "dc.date.accessioned", "value": "2017-08-23T14:25:56Z", "language": "", "element": "date", "qualifier": "accessioned", "schema": "dc"}, {"key": "dc.date.available", "value": "2017-08-23T14:25:56Z", "language": "", "element": "date", "qualifier": "available", "schema": "dc"}, {"key": "dc.date.issued", "value": "2017", "language": null, "element": "date", "qualifier": "issued", "schema": "dc"}, {"key": "dc.identifier.other", "value": "oai:jykdok.linneanet.fi:1720000", "language": null, "element": "identifier", "qualifier": "other", "schema": "dc"}, {"key": "dc.identifier.uri", "value": "https://jyx.jyu.fi/handle/123456789/55161", "language": "", "element": "identifier", "qualifier": "uri", "schema": "dc"}, {"key": "dc.description.abstract", "value": "T\u00e4m\u00e4 maisterintutkielma k\u00e4sittelee kroonista sy\u00f6p\u00e4\u00e4 sairastavien ihmisten toimijuutta 2010-luvun Suomessa. Tutkimuksen tarkoituksena oli selvitt\u00e4\u00e4, millaista kroonista sy\u00f6p\u00e4\u00e4 sairastavien ihmisten toimijuus on, millaisia merkityksi\u00e4 sille annetaan ja miten se ilmenee ihmisten eri el\u00e4m\u00e4npiireiss\u00e4. N\u00e4it\u00e4 kysymyksi\u00e4 tarkasteltiin vasten yksil\u00f6n vastuullistamisen k\u00e4sitett\u00e4, jolla viitataan nykyisiin liberaaleihin poliittisiin j\u00e4rjestelmiin sis\u00e4ltyv\u00e4\u00e4n odotukseen yksil\u00f6n autonomisesta toimijuudesta. Suomessa autonominen toimijuus on lis\u00e4ksi t\u00e4rke\u00e4 kulttuurinen arvo. Vakavasti sairas ei aina kykene toimimaan n\u00e4iden odotusten mukaisesti. Tutkimuksessa selvitettiin lis\u00e4ksi sit\u00e4, miten kroonista sy\u00f6p\u00e4\u00e4 sairastavat hahmottavat sairauttaan suhteessa sy\u00f6v\u00e4n ja kroonisten sairauksien kulttuurisiin kategorioihin. Tutkimus toteutettiin etnografisella tutkimusotteella. Aineisto koostui yhdeks\u00e4st\u00e4 kroonista sy\u00f6p\u00e4\u00e4 sairastavan teemahaastattelusta, ja se analysoitiin laadullisen sis\u00e4ll\u00f6nanalyysiin keinoin.\r\n\r\nTutkimus osoitti, ett\u00e4 kroonista sy\u00f6p\u00e4\u00e4 sairastavien toimijuuden muodot vaihtelevat konteksti- ja tilannesidonnaisesti. Aineistossa havaittiin kolme keskeist\u00e4 toimijuuden muotoa. Olemisella viitataan pienimuotoiseen toimijuuteen, esimerkiksi tilanteen siet\u00e4miseen silloin, kun sairauden ja hoitojen asettamat toiminnan rajoitteet pakottavat ihmisen paikoilleen ja riippuvaiseksi, pieneen tilaan. Tekemisell\u00e4 tarkoitetaan puolestaan edellist\u00e4 autonomisempaa ja intentionaalisempaa toimijuuden muotoa. Siin\u00e4 on kysymys omien kulttuurisesti m\u00e4\u00e4rittyvien projektien toteuttamisesta arjessa silloin, kun toiminnan rajoitteet eiv\u00e4t merkitt\u00e4v\u00e4sti kavenna ihmisen toiminnan mahdollisuuksia. Vastustaminen viittaa taas toimijuuteen vastarintana. T\u00e4m\u00e4 toimijuuden muoto on n\u00e4kyviss\u00e4 kroonista sy\u00f6p\u00e4\u00e4 sairastavien suhteessa terveydenhuoltoon esimerkiksi silloin, kun he eiv\u00e4t ole terveydenhuollon ammattilaisten kanssa samaa mielt\u00e4 sairautensa hoidosta. Sairautena krooninen sy\u00f6p\u00e4 asettui haastateltavien kerronnassa osin sy\u00f6v\u00e4n ja osin kroonisten sairauksien kulttuuriseen sairauskategoriaan.\r\n\r\nTutkimuksen perusteella voidaan p\u00e4\u00e4tell\u00e4, ett\u00e4 sairaat ihmiset eiv\u00e4t pysty kaikissa tilanteissa olemaan autonomisia toimijoita, vaikka sit\u00e4 heilt\u00e4 odotetaan ja he tavoittelevat autonomista toimijuutta my\u00f6s itse. Sairaiden ihmisten toimijuuden hauraus ja monimuotoisuus sek\u00e4 kroonisen sy\u00f6v\u00e4n erityisluonne tulisi jatkossa ottaa paremmin huomioon niin sosiaali- ja terveydenhuollon palvelujen suunnittelussa kuin yhteiskunnallisessa keskustelussa ja p\u00e4\u00e4t\u00f6ksenteossakin.", "language": "fi", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Submitted using Plone Publishing form by Kaisa Anttila (kamaantt) on 2017-08-23 14:25:56.092313. Form: Pro gradu -lomake (https://kirjasto.jyu.fi/julkaisut/julkaisulomakkeet/pro-gradu-lomake). JyX data: [jyx_publishing-allowed (fi) =True]", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Submitted by jyx lomake-julkaisija (jyx-julkaisija.group@korppi.jyu.fi) on 2017-08-23T14:25:56Z\r\nNo. of bitstreams: 2\r\nURN:NBN:fi:jyu-201708233545.pdf: 1636402 bytes, checksum: e0cb1026ebdaa918d1772c4026046e37 (MD5)\r\nlicense.html: 4878 bytes, checksum: 1d2f16c479a6410d569375a1dc6688e3 (MD5)", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Made available in DSpace on 2017-08-23T14:25:56Z (GMT). No. of bitstreams: 2\r\nURN:NBN:fi:jyu-201708233545.pdf: 1636402 bytes, checksum: e0cb1026ebdaa918d1772c4026046e37 (MD5)\r\nlicense.html: 4878 bytes, checksum: 1d2f16c479a6410d569375a1dc6688e3 (MD5)\r\n Previous issue date: 2017", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.format.extent", "value": "1 verkkoaineisto (123 sivua)", "language": null, "element": "format", "qualifier": "extent", "schema": "dc"}, {"key": "dc.format.mimetype", "value": "application/pdf", "language": null, "element": "format", "qualifier": "mimetype", "schema": "dc"}, {"key": "dc.language.iso", "value": "fin", "language": null, "element": "language", "qualifier": "iso", "schema": "dc"}, {"key": "dc.rights", "value": "In Copyright", "language": "en", "element": "rights", "qualifier": null, "schema": "dc"}, {"key": "dc.subject.other", "value": "krooninen sy\u00f6p\u00e4", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.subject.other", "value": "l\u00e4\u00e4ketieteellinen antropologia", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.subject.other", "value": "toimijuus", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.subject.other", "value": "autonomia", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.subject.other", "value": "riippuvuus", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.subject.other", "value": "k\u00e4rsimys", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.title", "value": "Autonomia, riippuvuus ja krooninen sy\u00f6p\u00e4 : toimijuuden merkitysten rakentuminen kroonista sy\u00f6p\u00e4\u00e4 sairastavien arjessa", "language": null, "element": "title", "qualifier": null, "schema": "dc"}, {"key": "dc.title.alternative", "value": "Toimijuuden merkitysten rakentuminen kroonista sy\u00f6p\u00e4\u00e4 sairastavien arjessa", "language": null, "element": "title", "qualifier": "alternative", "schema": "dc"}, {"key": "dc.type", "value": "master thesis", "language": null, "element": "type", "qualifier": null, "schema": "dc"}, {"key": "dc.identifier.urn", "value": "URN:NBN:fi:jyu-201708233545", "language": null, "element": "identifier", "qualifier": "urn", "schema": "dc"}, {"key": "dc.type.ontasot", "value": "Pro gradu -tutkielma", "language": "fi", "element": "type", "qualifier": "ontasot", "schema": "dc"}, {"key": "dc.type.ontasot", "value": "Master\u2019s thesis", "language": "en", "element": "type", "qualifier": "ontasot", "schema": "dc"}, {"key": "dc.contributor.faculty", "value": "Humanistis-yhteiskuntatieteellinen tiedekunta", "language": "fi", "element": "contributor", "qualifier": "faculty", "schema": "dc"}, {"key": "dc.contributor.faculty", "value": "Faculty of Humanities and Social Sciences", "language": "en", "element": "contributor", "qualifier": 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