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[{"key": "dc.contributor.author", "value": "M\u00e4lk\u00f6nen, Ida", "language": null, "element": "contributor", "qualifier": "author", "schema": "dc"}, {"key": "dc.date.accessioned", "value": "2014-06-17T13:03:41Z", "language": "", "element": "date", "qualifier": "accessioned", "schema": "dc"}, {"key": "dc.date.available", "value": "2014-06-17T13:03:41Z", "language": "", "element": "date", "qualifier": "available", "schema": "dc"}, {"key": "dc.date.issued", "value": "2014", "language": null, "element": "date", "qualifier": "issued", "schema": "dc"}, {"key": "dc.identifier.other", "value": "oai:jykdok.linneanet.fi:1437631", "language": null, "element": "identifier", "qualifier": "other", "schema": "dc"}, {"key": "dc.identifier.uri", "value": "https://jyx.jyu.fi/handle/123456789/43758", "language": "", "element": "identifier", "qualifier": "uri", "schema": "dc"}, {"key": "dc.description.abstract", "value": "Kemialliset ja ortopediset hoidot ovat nousseet perinteisen fysioterapian rinnalle spastisuuden hoitokeinona. Siit\u00e4 huolimatta ett\u00e4 kahden viime vuosikymmenen aikana n\u00e4iden hoitojen suosio on kasvanut, ne eiv\u00e4t korvaa perinteist\u00e4 fysioterapiaa. Kemiallisena hoitona botuliinitoksiini A -hoidon suosio on perustunut leikkaustarpeen viivytt\u00e4miseen, kivun hallintaan sek\u00e4 spastisuuden helpottumisen kautta toiminnallisuuden lis\u00e4\u00e4ntymiseen erityisesti liev\u00e4sti tai keskivaikeasti CP-vammaisilla lapsilla ja nuorilla.\r\n\r\nBotuliinihoidon tehokas hy\u00f6dynt\u00e4minen edellytt\u00e4\u00e4 sek\u00e4 fysioterapian ett\u00e4 perheen fysioterapeuttisen ohjauksen toteutumista. Lapsen elinymp\u00e4rist\u00f6 on perhe, ja vanhempien k\u00e4sityksi\u00e4 botuliinihoidon yhteydess\u00e4 tapahtuvasta fysioterapeuttisesta ohjauksesta on aiemmissa tutkimuksissa tutkittu vain v\u00e4h\u00e4n tai ei lainkaan. T\u00e4m\u00e4n pro gradu -tutkimuksen tavoitteena oli kuvata vanhempien k\u00e4sityksi\u00e4 saamastaan ohjauksesta kyseisen toimenpiteen yhteydess\u00e4. Tutkimus oli osa Jyv\u00e4skyl\u00e4n yliopiston ja Keski-Suomen sairaanhoitopiirin Fysioterapeuttinen potilasohjaus -tutkimushanketta, ja sen aineistona olivat Keski-Suomen keskussairaalassa 1.5-1.9.2013 botuliinihoitoa etuk\u00e4teissuunnittelun mukaisesti saaneet CP-vammaiset lapset sek\u00e4 heid\u00e4n perheens\u00e4. Tutkimusaineisto ker\u00e4ttiin haastatteluin. Tutkimukseen osallistuvia perheit\u00e4 oli kaksi, ja molempia perheit\u00e4 haastateltiin kolme kertaa koko hoitoprosessin aikana. Pitkitt\u00e4isasetelman avulla saatiin kokonaisk\u00e4sitys fysioterapeuttisesta ohjauksesta koko kyseisen hoidon yhteydess\u00e4.\r\n\r\nAineiston analyysi toteutettiin fenomenografisesti, ja analyysin perusteella botuliinihoidon yhteydess\u00e4 toteutunut fysioterapeuttinen ohjaus koostui viidest\u00e4 teemasta: 1) lapsen toiminnallisuus, 2) Botox\u00ae -tiedon luonne, 3) kuntoutuksen asiantuntijuus, 4) kuntoutus perheen arjessa ja 5) joustava perheen arki. N\u00e4m\u00e4 viisi teemaa ilmeniv\u00e4t kolmessa eri kuvauskategoriassa. Vanhempien ymm\u00e4rrys fysioterapeuttisesta ohjauksesta laajeni ensimm\u00e4isest\u00e4, asiantuntijal\u00e4ht\u00f6isen tiedon kuvauskategoriasta (I) kohti ylint\u00e4, perheen kehitt\u00e4v\u00e4 osallistuminen kuntoutuksessa -kuvauskategoriaa (III). Vanhempien ymm\u00e4rryksen lis\u00e4\u00e4ntyminen oli edellytyksen\u00e4 sille, ett\u00e4 perheet p\u00e4\u00e4siv\u00e4t osallistumaan oman lapsensa toiminnan edist\u00e4miseen botuliinitoimenpiteen yhteydess\u00e4.\r\n\r\nPerheiden ymm\u00e4rt\u00e4misen ja ohjauksen perhekeskeisyyden kasvun edellytyksen\u00e4 oli tiedon lis\u00e4\u00e4ntyminen, joka auttoi perheit\u00e4 ymm\u00e4rt\u00e4m\u00e4\u00e4n fysioterapeuttista ohjausta ilmi\u00f6n\u00e4 paremmin ja perhe p\u00e4\u00e4si osallistumaan lapsen kuntoutukseen aiempaa kokonaisvaltaisemmin. Vanhempien k\u00e4sitykset saamastaan fysioterapeuttisesta ohjauksesta olivat samansuuntaisia: ohjaus oli haluttua eik\u00e4 tietoa voinut olla tarjolla liikaa. Vanhemmat toivoivat fysioterapeuttien hy\u00f6dynt\u00e4v\u00e4n ohjauksessaan l\u00e4\u00e4ketieteellisten termien avaamista ja avointa puhetta. Lis\u00e4ksi huomionarvoista oli vanhempien halu osallistua kuntouttavaan toimintaan.", "language": "fi", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.abstract", "value": "Chemical and orthopedic interventions are widely used as a treatment for spasticity. Despite that, they are not going to replace conventional physiotherapy. As a chemical treatment, botulinum toxin type A\u2019s popularity has been based on its potential to postpone surgical treatments, control pain and to ease spasticity especially in the group of mildly impaired children and young people with Cerebral Palsy. Previous studies show that a little is known about physiotherapy interventions and the role of physiotherapists during botulinum toxin treatment. Considering this neural toxin, research has been very much based on pharmacological point of view. Efficient exploitation of botulinum toxin treatment requires both physiotherapy and physiotherapeutic counseling of the family. Family is child\u2019s natural environment, and parents perceptions of physiotherapeutic counseling given during botulinum toxin treatment has been studied only a little.\r\n\r\nThe aim of this Master\u2019s Thesis was to explore parents\u2019 perceptions of patient counseling given to the family before, after and during child\u2019s botulinum toxin treatment. Study was part of the Fysioterapeuttinen potilasohjaus -project, which was executed in co-operation with the University of Jyv\u00e4skyl\u00e4 and the Hospital District of Central Finland (KSSHP). The study material consisted of children who had botulinum toxin -injections in the time frame of 1.5.-1.9.2013 and their families. Two families attended this study and the data was collected by interviews. Both families were interviewed three times during the treatment to get the general view of botulinum toxin treatment and patient counseling.\r\n\r\nThe research method in this Master\u2019s Thesis was phenomenographic analysis. Based on the analysis, physiotherapeutic counseling given to the family consisted of five themes: 1) child\u2019s functionality, 2) nature of Botox\u00ae information, 3) expertise of rehabilitation, 4) rehabilitation in daily life and 5) adaptive daily life. These five themes appeared in three levels. Parents\u2019 understanding of physiotherapeutic counseling increased from the first, category of professional knowledge (I), towards the highest, parents\u2019 improving participation in rehabilitation -category (III). Parents\u2019 progressive understanding was required in order that they were able to participate to promote their child\u2019s activity during botulinum toxin treatment.\r\n\r\nRequirements of growing understanding and family-centeredness was increased information, that helped parents understand physiotherapeutic counseling better as a phenomena, and enabled families to participate in their child\u2019s rehabilitation more comprehensively than before. Parents\u2019 perceptions of counseling given to them by physiotherapists were much alike: counseling was wanted and there was never too much information. Parents appreciated translating of medical terms and open, honest speech. In addition, parents desire to be involved in their child\u2019s rehabilitation was worth of noticing.\r\n\r\nKey words: Cerebral Palsy, Botulinum Toxin, patient counseling, phenomenography", "language": "en", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Submitted using Plone Publishing form by Ida M\u00e4lk\u00f6nen (idmamalk) on 2014-06-17 13:03:40.454995. Form: Pro gradu -lomake (1 tekij\u00e4) (https://kirjasto.jyu.fi/julkaisut/julkaisulomakkeet/pro-gradu-lomake-1-tekijae). JyX data:", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Submitted by jyx lomake-julkaisija (jyx-julkaisija@noreply.fi) on 2014-06-17T13:03:40Z\r\nNo. of bitstreams: 2\r\nURN:NBN:fi:jyu-201406172062.pdf: 1025428 bytes, checksum: 245b7cdb703e093b6a9840abcd746964 (MD5)\r\nlicense.html: 4963 bytes, checksum: 345bc68c735f0e056b93e9ca08c24cc8 (MD5)", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Made available in DSpace on 2014-06-17T13:03:41Z (GMT). No. of bitstreams: 2\r\nURN:NBN:fi:jyu-201406172062.pdf: 1025428 bytes, checksum: 245b7cdb703e093b6a9840abcd746964 (MD5)\r\nlicense.html: 4963 bytes, checksum: 345bc68c735f0e056b93e9ca08c24cc8 (MD5)\r\n Previous issue date: 2014", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.format.extent", "value": "1 verkkoaineisto (72 sivua)", "language": null, "element": "format", "qualifier": "extent", "schema": "dc"}, {"key": "dc.format.mimetype", "value": "application/pdf", "language": null, "element": "format", "qualifier": "mimetype", "schema": "dc"}, {"key": "dc.language.iso", "value": "fin", "language": null, "element": "language", "qualifier": "iso", "schema": "dc"}, {"key": "dc.rights", "value": "In Copyright", "language": "en", "element": "rights", "qualifier": null, "schema": "dc"}, {"key": "dc.subject.other", "value": "CP-oireyhtym\u00e4", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.subject.other", "value": "botuliinihoito", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.subject.other", "value": "fysioterapia", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.subject.other", "value": "ohjaus", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.subject.other", "value": "fenomenografia", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.title", "value": "\"Me halutaan ymm\u00e4rt\u00e4\u00e4\" : vanhempien k\u00e4sityksi\u00e4 fysioterapeuttisesta ohjauksesta CP-lapsen botuliinihoidon yhteydess\u00e4", "language": null, "element": "title", "qualifier": null, "schema": "dc"}, {"key": "dc.title.alternative", "value": "Vanhempien k\u00e4sityksi\u00e4 fysioterapeuttisesta ohjauksesta CP-lapsen botuliinihoidon yhteydess\u00e4", "language": null, "element": "title", "qualifier": "alternative", "schema": "dc"}, 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