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[{"key": "dc.contributor.author", "value": "Ikonen, P\u00e4ivi", "language": null, "element": "contributor", "qualifier": "author", "schema": "dc"}, {"key": "dc.date.accessioned", "value": "2013-06-11T18:20:37Z", "language": "", "element": "date", "qualifier": "accessioned", "schema": "dc"}, {"key": "dc.date.available", "value": "2013-06-11T18:20:37Z", "language": "", "element": "date", "qualifier": "available", "schema": "dc"}, {"key": "dc.date.issued", "value": "2013", "language": null, "element": "date", "qualifier": "issued", "schema": "dc"}, {"key": "dc.identifier.other", "value": "oai:jykdok.linneanet.fi:1269826", "language": null, "element": "identifier", "qualifier": "other", "schema": "dc"}, {"key": "dc.identifier.uri", "value": "https://jyx.jyu.fi/handle/123456789/41735", "language": "", "element": "identifier", "qualifier": "uri", "schema": "dc"}, {"key": "dc.description.abstract", "value": "Kehitysvammaisten elinajanodote on noussut, joten nyky\u00e4\u00e4n yhteiskunnassa on aiempaa enemm\u00e4n ik\u00e4\u00e4ntyneit\u00e4 kehitysvammaisia. Osa ik\u00e4\u00e4ntyneist\u00e4 kehitysvammaisista asuu edelleen vanhempiensa kanssa kotona. Perheiden kotona toteuttamalla hoidolla on t\u00e4rke\u00e4 merkitys yhteiskunnassamme. Omaishoitajuus on voinut kest\u00e4\u00e4 jopa useita vuosikymmeni\u00e4. Omaishoito on nyky\u00e4\u00e4n yksi t\u00e4rke\u00e4 muoto kuntien ja valtion vammais- ja vanhustenhoitostrategioissa. Tutkimuksen tarkoituksena oli selvitt\u00e4\u00e4, mink\u00e4laisia kokemuksia vanhemmilla on pitk\u00e4kestoisesta kehitysvammaisen kotona asuvan lapsen omaishoitajuudesta. Lis\u00e4ksi selvitettiin, mink\u00e4laisia ajatuksia vanhemmilla on lastensa tule-vaisuudesta.\r\n\r\nTutkimuksen aineisto koostuu yhdeks\u00e4n vanhemman haastattelusta, joilla on yli 40-vuotias kehitys-vammainen lapsi kotona hoidettavana. Vanhemmista kolme on Keski-Suomen ja kuusi Etel\u00e4-Savon pienist\u00e4 kunnista. Aineiston keruumenetelm\u00e4n\u00e4 k\u00e4ytettiin teemahaastattelua. Teemahaastattelussa teemoina olivat kehitysvammaisuus, omaishoitajuus, tulevaisuus sek\u00e4 koti, perhe ja vanhemmuus. Aineisto analysoitiin aineistol\u00e4ht\u00f6isen sis\u00e4ll\u00f6nanalyysin avulla.\r\n\r\nOman kehitysvammaisen lapsen hoitaminen kotona on ollut kaikille vanhemmille itsest\u00e4\u00e4nselvyys. Omaishoitajuuteen on kasvettu vuosien my\u00f6t\u00e4. Vanhemman rooli on kuitenkin omaishoitajan roolia t\u00e4rke\u00e4mpi. Oman lapsen omaishoitajuus koetaan eritt\u00e4in palkitsevana lapselta saadun palautteen, ilon ja tyytyv\u00e4isyyden kautta. Vanhemmat kokevat arjen sujuvuuden olevan keskeist\u00e4 omaishoita-juudessa. Arjen sujuvuuteen vaikuttaa kodin t\u00e4rke\u00e4 merkitys ja p\u00e4iv\u00e4rytmi. Omaishoitajuus on jat-kuvaa lapsen oikeuksien puolustamista, sill\u00e4 vanhempien mukaan yhteiskunta tukee heikosti kehi-tysvammaperheit\u00e4 ja vanhempien on itse tiedett\u00e4v\u00e4 ja taisteltava palveluista. Voimavaroikseen van-hemmat kertovat erilaiset harrastukset, yst\u00e4v\u00e4t ja muut ihmiset sek\u00e4 uskonnon. Omaishoitajuuden haasteiksi vanhemmat kokevat sitovuuden, pitk\u00e4kestoisuuden ja lapsen asioista huolehtimisen. Tu-levaisuuden varalle osalla vanhemmista on tarkka suunnitelma, jossa lapsesta huolehtii sukulaiset tai laitos. Pienell\u00e4 osalla vanhemmista ei ole mink\u00e4\u00e4nlaista suunnitelmaa tulevaisuudelle.", "language": "fi", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.abstract", "value": "Elderly people with intellectual disability and their aging caretakers. Parents\u2019 experiences about family caregiving of a child with intellectual disability\r\n\r\nThe life expectancy of people with intellectual disability has increased. Nowadays there are more older people with intellectual disability than earlier in our society. Many elderly people with intel-lectual disability still live at home with their parents. Family care has an important role in our socie-ty. Family caregiving may last even for many decades. Family caregiving is nowadays an important contributor in the strategies of the municipalities and the state in caring disabled and elderly people. Purpose of the present research was to find out what kind of experiences the parents have on long-lasting family care of a child with intellectual disability. Also, the purpose was to find out what kind of thoughts the parents have about their children\u2019s future.\r\n\r\nThe research material consists of interviews of nine parents who have intellectually disabled, over 40 years old child at home to be taken care of. Three of them are from Central Finland and six from Southern Savo small municipalities. Thematic interview method was used. Themes were intellectual disability, family caregiving and its future, home, family and parenthood. The interviews were ana-lyzed with material based content analysis.\r\n\r\nTaking care of own intellectually disabled child at home has been the obvious choice for all of the interviewed parents. They have matured in to family caretaking over the years. The parents consider the role of a parent more important than the role of a caretaker. Taking care of your own child is seen rewarding because of the feedback, the joy and satisfaction received from your own child. Everyday life, which consists of the importance of home and the daily schedule, creates fluency that is thought crucial in family caretaking. Family caretaking has also aspects of continuous defending of the child\u2019s rights. Parents say that the society supports families with intellectually disabled chil-dren poorly, and the parents need to know and fight for their benefits. Parents obtain strength from different hobbies, friends and religion. As challenges in family caretaking they see the demanding, and long-lasting nature of the task and taking care of the child\u2019s affairs. Towards the future some of the parents have an exact plan, in which the child is cared by the relatives or an institution. Minority of the parents have no future plan.", "language": "en", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Submitted using Plone Publishing form by P\u00e4ivi Ikonen (paelikon) on 2013-06-11 18:20:37.044435. Form: Pro gradu -lomake (1 tekij\u00e4) (https://kirjasto.jyu.fi/julkaisut/julkaisulomakkeet/pro-gradu-lomake-1-tekijae). JyX data:", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Submitted by jyx lomake-julkaisija (jyx-julkaisija@noreply.fi) on 2013-06-11T18:20:37Z\r\nNo. of bitstreams: 2\r\nURN:NBN:fi:jyu-201306111946.pdf: 889354 bytes, checksum: 5808597a3a133e0eb6f2da99d4423034 (MD5)\r\nlicense.html: 107 bytes, checksum: a7d86e598caa500b1b433bbb9dc8ef1c (MD5)", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Made available in DSpace on 2013-06-11T18:20:37Z (GMT). No. of bitstreams: 2\r\nURN:NBN:fi:jyu-201306111946.pdf: 889354 bytes, checksum: 5808597a3a133e0eb6f2da99d4423034 (MD5)\r\nlicense.html: 107 bytes, checksum: a7d86e598caa500b1b433bbb9dc8ef1c (MD5)\r\n Previous issue date: 2013", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.format.extent", "value": "1 verkkoaineisto.", "language": null, "element": "format", "qualifier": "extent", "schema": "dc"}, {"key": "dc.format.mimetype", "value": "application/pdf", "language": null, "element": "format", "qualifier": "mimetype", "schema": "dc"}, {"key": "dc.language.iso", "value": "fin", "language": null, "element": "language", "qualifier": "iso", "schema": "dc"}, {"key": "dc.rights", "value": "In Copyright", "language": "en", "element": "rights", "qualifier": null, "schema": "dc"}, {"key": "dc.subject.other", "value": "ik\u00e4\u00e4ntynyt kehitysvammainen", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.subject.other", "value": "omaishoitajuus", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.subject.other", "value": "vanhemmuus", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.title", "value": "Ik\u00e4\u00e4ntyneiden kehitysvammaisten ik\u00e4\u00e4ntyv\u00e4t hoitajat : vanhempien kokemuksia kehitysvammaisen lapsensa omaishoitajuudesta", "language": null, "element": "title", "qualifier": null, "schema": "dc"}, {"key": "dc.title.alternative", "value": "Vanhempien kokemuksia kehitysvammaisen lapsensa omaishoitajuudesta", "language": null, "element": "title", "qualifier": "alternative", "schema": "dc"}, {"key": "dc.type", "value": "master thesis", "language": null, "element": "type", "qualifier": null, "schema": "dc"}, {"key": "dc.identifier.urn", "value": "URN:NBN:fi:jyu-201306111946", "language": null, "element": "identifier", "qualifier": "urn", "schema": "dc"}, {"key": "dc.type.dcmitype", 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