| fullrecord |
[{"key": "dc.contributor.author", "value": "Saastamoinen, Tiina", "language": null, "element": "contributor", "qualifier": "author", "schema": "dc"}, {"key": "dc.date.accessioned", "value": "2013-05-29T09:52:34Z", "language": "", "element": "date", "qualifier": "accessioned", "schema": "dc"}, {"key": "dc.date.available", "value": "2013-05-29T09:52:34Z", "language": "", "element": "date", "qualifier": "available", "schema": "dc"}, {"key": "dc.date.issued", "value": "2013", "language": null, "element": "date", "qualifier": "issued", "schema": "dc"}, {"key": "dc.identifier.other", "value": "oai:jykdok.linneanet.fi:1268456", "language": null, "element": "identifier", "qualifier": "other", "schema": "dc"}, {"key": "dc.identifier.uri", "value": "https://jyx.jyu.fi/handle/123456789/41632", "language": "", "element": "identifier", "qualifier": "uri", "schema": "dc"}, {"key": "dc.description.abstract", "value": "V\u00e4est\u00f6 ik\u00e4\u00e4ntyy kaikkialla maailmassa. Samalla muistisairauteen sairastuneiden ja heit\u00e4 kotona hoitavien puolisoiden m\u00e4\u00e4r\u00e4 kasvaa. Muistisairaus vaikuttaa laajasti sek\u00e4 siihen sairastuneen ett\u00e4 h\u00e4nen l\u00e4heistens\u00e4 el\u00e4m\u00e4\u00e4n. Puoliso on erityisen herkk\u00e4 vaikutuksille, koska h\u00e4n toimii usein muistisairaan kumppaninsa hoivaajana. \r\n\r\nT\u00e4m\u00e4n tutkimuksen tarkoituksena oli selvitt\u00e4\u00e4, millaisia merkityksi\u00e4 puolisot antavat muistisairauden vaikutuksille parisuhteessa ja arjessa. Tavoitteena oli my\u00f6s selvitt\u00e4\u00e4, millaisia kokemuksia puolisoilla oli sairauden eri vaiheisiin liittyvist\u00e4 muutoksista el\u00e4m\u00e4ss\u00e4. Tutkimus on laadullinen ja aineisto koostuu kahdeksasta teemahaastattelusta. Aineisto analysoitiin aineistol\u00e4ht\u00f6isen sis\u00e4ll\u00f6nanalyysin menetelm\u00e4ll\u00e4. \r\n\r\nP\u00e4\u00e4tuloksiksi muodostuivat el\u00e4m\u00e4n mullistuminen, tukea antavat ja haasteelliset ihmissuhteet, menetyksen ja syyllisyyden tunteet sek\u00e4 pelot. El\u00e4m\u00e4n mullistumiseen liittyi parisuhteen muuttuminen hoitosuhteeksi sek\u00e4 arjen kotikeskeisyys. Motivaatiota hoitoty\u00f6h\u00f6n antoi vahva moraalinen velvollisuus huolehtia puolisosta mahdollisimman pitk\u00e4\u00e4n. L\u00e4heiset ihmissuhteet, etenkin lapsiin ja lastenlapsiin, koettiin t\u00e4rke\u00e4n\u00e4 voimavarana. Yst\u00e4v\u00e4piiri oli muuttunut sairauden my\u00f6t\u00e4. Vain ns. tosiyst\u00e4v\u00e4t olivat tukena uudessa el\u00e4m\u00e4ntilanteessa. Menetyksin\u00e4 koettiin puolison muuttuminen el\u00e4m\u00e4nkumppanista hoidettavaksi ja yhteisest\u00e4, terveest\u00e4 el\u00e4kei\u00e4st\u00e4 luopuminen. Syyllisyyden tunteita koettiin puolison viemisest\u00e4 kodin ulkopuolelle hoitoon. Koska t\u00e4rkeimp\u00e4n\u00e4 tavoitteena oli puolison asuminen kotona mahdollisimman pitk\u00e4\u00e4n, aiheutti omien voimien riitt\u00e4minen huolta. \r\n\r\nJohtop\u00e4\u00e4t\u00f6ksen\u00e4 voidaan sanoa, ett\u00e4 puolisot kokivat el\u00e4m\u00e4n olleen t\u00e4ynn\u00e4 menetyksi\u00e4, jotka alkoivat jo diagnoosista. Luovuttiin yhteisist\u00e4 harrastuksista, kodista, yst\u00e4vist\u00e4 sek\u00e4 asteittain puolisosta el\u00e4m\u00e4nkumppanina. Menetyksist\u00e4 huolimatta puolisot olivat motivoituneita hoitamaan puolisoa mahdollisimman kauan kotona. T\u00e4m\u00e4 tutkimus vahvisti sit\u00e4 k\u00e4sityst\u00e4, ett\u00e4 muistisairaus vaikuttaa sairastuneen lis\u00e4ksi my\u00f6s h\u00e4nen l\u00e4heisiins\u00e4.\r\n\r\nLis\u00e4tutkimusta aiheesta suositellaan. Muistisairaiden puolisot ovat t\u00e4rke\u00e4 tutkimuskohde jatkossa, koska kotona puolisoaan hoitavien m\u00e4\u00e4r\u00e4 kasvaa koko ajan ja heid\u00e4n hyvinvointinsa on avainasemassa muistisairaiden kotihoidon laadukkuudessa ja pitkittymisess\u00e4.", "language": "fi", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.abstract", "value": "The population is aging everywhere in the world. Simultaneously the amount of people increases who are diagnosed with dementia as well as the number of their caregivers. Dementia affects vastly the life of the diagnosed person but it also has an influence on the lives of people close to him/her. The spouse is especially prone to the influences because he/she is usually the prime caregiver of the dementia patient. \r\n\r\nThe purpose of this study was to find out what kind of meanings spouses give to the effects of dementia on their relationship and everyday life. The aim was also to examine what kind of experiences the spouses had about the changes in life in different stages of the illness. The research was qualitative and the material consists of eight theme interviews. The material was analyzed with the method of material based content analysis. \r\n\r\nMain results were the enormous life change, supporting and challenging relationships and feelings of loss, fear and guilt. Marital relationship had transformed into a caregiver - patient relationship. The moral obligation to take care of the spouse as long as possible acted as a resource and motivator. Close relationships, especially with the children and their families, were considered important sources of support. Circle of friends had changed during the illness. Only the best friends gave support in the new life situation. Spouse\u00b4s transformation from a life companion to someone who needs to be cared for and the loss of shared, healthy old age were considered as painful losses. Feelings of guilt were experienced when the spouse was in care outside of home. The limit of the caregiver\u00b4s strength was a concern because the main objective was to take care of the spouse at home as long as possible. \r\n\r\nAs a conclusion the life was experienced as a continuum of losses that started already at the time of the diagnosis. People had to quit joint hobbies and move away from home. They lost friendships and watched their life companion\u00b4s gradual decline. Despite of the losses experienced, the caregivers were motivated to take care of their spouses as long as possible. This research also confirms the perception that dementia has also an influence on demented person\u00b4s family and friends. \r\n\r\nFurther research is recommended. It is important to focus the research on people who take care of their spouses at home because their number is consistently rising and their well-being can be a factor in maintaining the quality of the care they give and prolonging their spouses care at home.", "language": "en", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Submitted using Plone Publishing form by Tiina Saastamoinen (tijosaas) on 2013-05-29 09:52:34.178657. Form: Pro gradu -lomake (1 tekij\u00e4) (https://kirjasto.jyu.fi/julkaisut/julkaisulomakkeet/pro-gradu-lomake-1-tekijae). JyX data:", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Submitted by jyx lomake-julkaisija (jyx-julkaisija@noreply.fi) on 2013-05-29T09:52:34Z\r\nNo. of bitstreams: 2\r\nURN:NBN:fi:jyu-201305291840.pdf: 352743 bytes, checksum: 21bab272f8eb65aa4af591eccfd49e99 (MD5)\r\nlicense.html: 107 bytes, checksum: a7d86e598caa500b1b433bbb9dc8ef1c (MD5)", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Made available in DSpace on 2013-05-29T09:52:34Z (GMT). No. of bitstreams: 2\r\nURN:NBN:fi:jyu-201305291840.pdf: 352743 bytes, checksum: 21bab272f8eb65aa4af591eccfd49e99 (MD5)\r\nlicense.html: 107 bytes, checksum: a7d86e598caa500b1b433bbb9dc8ef1c (MD5)\r\n Previous issue date: 2013", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.format.extent", "value": "68 sivua", "language": null, "element": "format", "qualifier": "extent", "schema": "dc"}, {"key": "dc.format.mimetype", "value": "application/pdf", "language": null, "element": "format", "qualifier": "mimetype", "schema": "dc"}, {"key": "dc.language.iso", "value": "fin", "language": null, "element": "language", "qualifier": "iso", "schema": "dc"}, {"key": "dc.rights", "value": "In Copyright", "language": "en", "element": "rights", "qualifier": null, "schema": "dc"}, {"key": "dc.subject.other", "value": "arki", "language": null, "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.title", "value": "Niin hyvin\u00e4 kuin huonoinakin p\u00e4ivin\u00e4, aina kuolemaan asti : puolisoiden antamia merkityksi\u00e4 muistisairauden vaikutuksille parisuhteessa ja arjessa", "language": null, "element": "title", "qualifier": null, "schema": "dc"}, {"key": "dc.title.alternative", "value": "Puolisoiden antamia merkityksi\u00e4 muistisairauden vaikutuksille parisuhteessa ja arjessa", "language": null, "element": "title", "qualifier": "alternative", "schema": "dc"}, {"key": "dc.type", "value": "master thesis", "language": null, "element": "type", "qualifier": null, "schema": "dc"}, {"key": "dc.identifier.urn", "value": "URN:NBN:fi:jyu-201305291840", "language": null, "element": "identifier", "qualifier": "urn", "schema": "dc"}, {"key": "dc.type.dcmitype", "value": "Text", "language": "en", "element": "type", "qualifier": "dcmitype", "schema": "dc"}, {"key": "dc.type.ontasot", "value": "Pro gradu -tutkielma", "language": "fi", "element": "type", "qualifier": "ontasot", "schema": "dc"}, {"key": "dc.type.ontasot", "value": "Master\u2019s thesis", "language": "en", "element": "type", "qualifier": "ontasot", "schema": "dc"}, {"key": "dc.contributor.faculty", "value": "Liikuntatieteellinen tiedekunta", "language": "fi", "element": "contributor", "qualifier": "faculty", "schema": "dc"}, {"key": "dc.contributor.faculty", "value": "Faculty of Sport and Health Sciences", "language": "en", "element": "contributor", "qualifier": "faculty", "schema": "dc"}, {"key": "dc.contributor.department", "value": "Terveystieteiden laitos", "language": "fi", "element": "contributor", "qualifier": "department", "schema": "dc"}, {"key": "dc.contributor.department", "value": "Department of Health Sciences", "language": "en", "element": "contributor", "qualifier": "department", "schema": "dc"}, {"key": "dc.contributor.organization", "value": "University of Jyv\u00e4skyl\u00e4", "language": "en", "element": "contributor", "qualifier": "organization", "schema": "dc"}, {"key": "dc.contributor.organization", "value": "Jyv\u00e4skyl\u00e4n yliopisto", "language": "fi", "element": "contributor", "qualifier": "organization", "schema": "dc"}, {"key": "dc.subject.discipline", "value": "Gerontologia ja kansanterveys", "language": "fi", "element": "subject", "qualifier": "discipline", "schema": "dc"}, {"key": "dc.subject.discipline", "value": "Gerontology and Public Health", "language": "en", "element": "subject", "qualifier": "discipline", "schema": "dc"}, {"key": "dc.date.updated", "value": "2013-05-29T09:52:34Z", "language": "", "element": "date", "qualifier": "updated", "schema": "dc"}, {"key": "dc.type.coar", "value": "http://purl.org/coar/resource_type/c_bdcc", "language": null, "element": "type", "qualifier": "coar", "schema": "dc"}, {"key": "dc.rights.accesslevel", "value": "openAccess", "language": "fi", "element": "rights", "qualifier": "accesslevel", "schema": "dc"}, {"key": "dc.type.publication", "value": "masterThesis", "language": null, "element": "type", "qualifier": "publication", "schema": "dc"}, {"key": "dc.subject.oppiainekoodi", "value": "50423", "language": null, "element": "subject", "qualifier": "oppiainekoodi", "schema": "dc"}, {"key": "dc.subject.yso", "value": "muistisairaudet", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "parisuhde", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.subject.yso", "value": "ik\u00e4\u00e4ntyminen", "language": null, "element": "subject", "qualifier": "yso", "schema": "dc"}, {"key": "dc.format.content", "value": "fulltext", "language": null, "element": "format", "qualifier": "content", "schema": "dc"}, {"key": "dc.rights.url", "value": "https://rightsstatements.org/page/InC/1.0/", "language": null, "element": "rights", "qualifier": "url", "schema": "dc"}, {"key": "dc.type.okm", "value": "G2", "language": null, "element": "type", "qualifier": "okm", "schema": "dc"}]
|