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[{"key": "dc.contributor.author", "value": "Lampela, Maarit", "language": null, "element": "contributor", "qualifier": "author", "schema": "dc"}, {"key": "dc.date.accessioned", "value": "2013-02-14T06:01:58Z", "language": "", "element": "date", "qualifier": "accessioned", "schema": "dc"}, {"key": "dc.date.available", "value": "2013-02-14T06:01:58Z", "language": "", "element": "date", "qualifier": "available", "schema": "dc"}, {"key": "dc.date.issued", "value": "2013", "language": null, "element": "date", "qualifier": "issued", "schema": "dc"}, {"key": "dc.identifier.other", "value": "oai:jykdok.linneanet.fi:1253114", "language": null, "element": "identifier", "qualifier": "other", "schema": "dc"}, {"key": "dc.identifier.uri", "value": "https://jyx.jyu.fi/handle/123456789/40939", "language": "", "element": "identifier", "qualifier": "uri", "schema": "dc"}, {"key": "dc.description.abstract", "value": "Tutkimukseni kuvaa ty\u00f6ik\u00e4isen\u00e4 etenev\u00e4\u00e4n muistisairauteen sairastuneiden ihmisten el\u00e4-m\u00e4\u00e4. Tutkimukseni tavoitteena on tuottaa tietoa ty\u00f6ik\u00e4isen\u00e4 muistisairauteen sairastunei-den ihmisten arjesta sek\u00e4 m\u00e4\u00e4ritt\u00e4\u00e4 sairastuneiden sosiaalisen kuntoutuksen elementtej\u00e4. Tutkimuksen p\u00e4\u00e4m\u00e4\u00e4r\u00e4n\u00e4 on nostaa esille sairastuneiden oma \u00e4\u00e4ni ja kokemuksellinen asiantuntijuus.\r\nTutkimuksen metodologisena l\u00e4hestymistapana on narratiivisuus. Aineiston keruumene-telm\u00e4n\u00e4 k\u00e4ytet\u00e4\u00e4n narratiivista haastattelua. Haastatteluihin osallistuu viisi Alzheimerin tautiin sairastunutta ihmist\u00e4. Tutkimuksen analyysimenetelm\u00e4n\u00e4 k\u00e4yt\u00e4n tarinoiden eli nar-ratiivien analyysia. Analyysin perusteella sairastuminen muistisairauteen on prosessi, joka muodostaa kokonaisuuden tarinoissa: el\u00e4m\u00e4 muutoksessa, el\u00e4m\u00e4n uudelleen rakentaminen ja el\u00e4m\u00e4 sairauden kanssa.\r\nTutkimustulosten perusteella sairaudella on merkityst\u00e4 heid\u00e4n el\u00e4m\u00e4ss\u00e4\u00e4n. Alzheimerin tauti vaikuttaa omaan itseen, sosiaaliseen verkostoon sek\u00e4 palveluiden ja tuen tarpeeseen. Sairauden vaikutukset n\u00e4kyv\u00e4t erilaisina haasteina oman n\u00e4k\u00f6isen el\u00e4m\u00e4n jatkumiselle sairastuneiden tarinoissa. Merkitt\u00e4v\u00e4\u00e4 on tulosten valossa sairastuneiden ihmisten vahva halu jatkaa omann\u00e4k\u00f6ist\u00e4, normaalia el\u00e4m\u00e4\u00e4 ja arkea muistisairauden kanssa.\r\nTarinoiden johtop\u00e4\u00e4t\u00f6ksiss\u00e4 kuvaan sit\u00e4 vahvaa j\u00e4nnitett\u00e4, mik\u00e4 syntyy riippuvuuden ja itsen\u00e4isyyden v\u00e4lille sairastuneiden ihmisten tarinoissa. Oman itsen\u00e4isyyden s\u00e4ilytt\u00e4minen sairaudesta huolimatta on t\u00e4rke\u00e4\u00e4. T\u00e4t\u00e4 itsen\u00e4isyytt\u00e4 tukee henkil\u00f6kohtaisen ja sosiaalisen identiteetin vahvistaminen sairauden kaikissa vaiheissa. Henkil\u00f6kohtaista identiteetti\u00e4 tu-kee tiedon saaminen ja neuvonta, arjen aktiviteetit ja omanik\u00e4isille suunnatut, r\u00e4\u00e4t\u00e4l\u00f6idyt palvelut koko sairausprosessin ajan. Sosiaalista identiteetti\u00e4 tukee vahva sosiaalinen ver-kosto ja silt\u00e4 saatu psykososiaalinen tuki. Sosiaaliseen verkostoon kuuluvat omaiset ja l\u00e4-heiset, ammattilaiset sek\u00e4 vertaiset. Vertaistuki nousee vahvaksi tuen antajaksi tulosten perusteella. Ammattilaisten ja vertaisten antama tuki eiv\u00e4t ole toisiaan poissulkevia tuen muotoja vaan ne ovat sosiaalisen kuntoutuksen kokonaisuudessa toisiaan tukevia element-tej\u00e4. Sosiaalinen kuntoutus on osa Alzheimerin tautiin sairastuneiden kokonaisvaltaista kuntoutusta. T\u00e4m\u00e4 tukee mahdollisuutta jatkaa omann\u00e4k\u00f6ist\u00e4 el\u00e4m\u00e4\u00e4 sairaudesta huolimat-ta.", "language": "fi", "element": "description", "qualifier": "abstract", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Submitted using Plone Publishing form by Miia Hakanen (mihakane) on 2013-02-14 06:01:55.973108. Form: Admin-lomake Pro gradu -t\u00f6ille (https://kirjasto.jyu.fi/julkaisut/julkaisulomakkeet/admin-lomake-pro-gradu-toille). JyX data:", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Submitted by jyx lomake-julkaisija (jyx-julkaisija@noreply.fi) on 2013-02-14T06:01:57Z\r\nNo. of bitstreams: 2\r\nURN:NBN:fi:jyu-201302141217.pdf: 803799 bytes, checksum: c1441b5994e92b3d1ece31cc2ff5b8f9 (MD5)\r\nlicense.html: 107 bytes, checksum: a7d86e598caa500b1b433bbb9dc8ef1c (MD5)", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.description.provenance", "value": "Made available in DSpace on 2013-02-14T06:01:58Z (GMT). No. of bitstreams: 2\r\nURN:NBN:fi:jyu-201302141217.pdf: 803799 bytes, checksum: c1441b5994e92b3d1ece31cc2ff5b8f9 (MD5)\r\nlicense.html: 107 bytes, checksum: a7d86e598caa500b1b433bbb9dc8ef1c (MD5)\r\n Previous issue date: 2013", "language": "en", "element": "description", "qualifier": "provenance", "schema": "dc"}, {"key": "dc.format.extent", "value": "60 sivua", "language": null, "element": "format", "qualifier": "extent", "schema": "dc"}, {"key": "dc.format.mimetype", "value": "application/pdf", "language": null, "element": "format", "qualifier": "mimetype", "schema": "dc"}, {"key": "dc.language.iso", "value": "fin", "language": null, "element": "language", "qualifier": "iso", "schema": "dc"}, {"key": "dc.rights", "value": "In Copyright", "language": "en", "element": "rights", "qualifier": null, "schema": "dc"}, {"key": "dc.subject.other", "value": "ty\u00f6ik\u00e4inen muistisairas", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.subject.other", "value": "muistisairaus", "language": "", "element": "subject", "qualifier": "other", "schema": "dc"}, {"key": "dc.title", "value": "El\u00e4m\u00e4n Don Quijotet : kokemuksia ty\u00f6ik\u00e4isen\u00e4 muistisairauteen sairastumisesta", "language": null, "element": "title", "qualifier": null, "schema": "dc"}, {"key": "dc.title.alternative", "value": "Kokemuksia ty\u00f6ik\u00e4isen\u00e4 muistisairauteen sairastumisesta", "language": null, "element": "title", "qualifier": "alternative", "schema": "dc"}, {"key": "dc.type", "value": "master thesis", "language": null, "element": "type", "qualifier": null, "schema": "dc"}, {"key": "dc.identifier.urn", "value": "URN:NBN:fi:jyu-201302141217", "language": null, "element": "identifier", "qualifier": "urn", "schema": "dc"}, {"key": "dc.type.dcmitype", "value": "Text", "language": "en", "element": "type", "qualifier": "dcmitype", "schema": "dc"}, {"key": "dc.type.ontasot", "value": "Pro gradu -tutkielma", "language": "fi", 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